End of a long road, and the beginning of another..

[patmackfin]

I first wrote on this Lupus page 2 years ago, searching and confused, trying to figure things out on my own, having already been diagnosed with Pernicious Anemia/B12 deficiency in 2015.

So after being fobbed off by doctors and a couple of (lazy/overworked/jaded)Rheumatologists,I was finally diagnosed with SLE Lupus on September 15th.

The reason I am writing this is to encourage you to keep going, don't give up. Get copies and keep records of all your blood tests. take photos of all those weird symptoms( I sent them to myself on messenger so I always had them handy).

Be ready to use those 5-10 minutes with your Rheumatologist wisely. I listed symptoms like this and handed them over as soon as I went into his office, (you know how the brain fog goes?, especially under pressure)

SYMPTOMS

history/past....

ongoing.....

occasionally...

new....

meds & vitamins

I hope this is helpful and encouraging to someone. It's been a long road,Probably 10 years plus in my case.

Knowing whats wrong is still so much better than not knowing I think. Having a group of people to talk to, in the same boat is priceless. I am taking it a day at a time and learning as much as I can ,without fear now.

GOOD LUCK EVERYONE, keep going.

[Spanielmadlady]

Sending you hugs.im pleased you now have some answers and can move forward.it took 5 years for me to get a diagnosis and that was 2 years ago x

[svfarmer]

I’m really pleased that you’ve now got a diagnosis I’m sure it will give a lot of people hope xx

[HappyBee66]

Hi you have given me hope, I have been waiting since Feb this year to get an appointment to see a Rheumatologist finally I have one, I blood test came back SLE and I have been struggling to get through these months.

I have done a diary and taken photos show what is going on with me as I was told last year it was just the menopause and pretty much go away.

You have given me hope

Many thanks