Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,125 members • 28,443 posts

Sort posts by:

Just curious, has anyone been diagnosed with COPD since being diagnosed with Lupus?

I was first diagnosed with asthma, but my lung function has dropped so quickly, it was changed to asthma/COPD. I have never smoked in my life. I am just...

I was first diagnosed with asthma, but my lung function has dropped so quickly, ...

Willow7733

•1 day ago

3 Replies

Possible Lupus?

I've recently had a panel of bloods including FBC, Auto Immune panels, Thyroid ( I have thyroid disease) and others following a GP visit about multiple mouth...

I've recently had a panel of bloods including FBC, Auto Immune panels, Thyroid ...

Femme1

•2 days ago

4 Replies

Anyone take Saphnelo infusions? Would love to hear feedback...

Going to try the Saphnelo infusions.... has anyone had experience with this? Similar to Benlysta but not as much research out yet... thanks.

Going to try the Saphnelo infusions.... has anyone had experience with this? Sim...

amberb444

•2 days ago

1 Reply

Want to take advantage of all our features? Just log in!

Require a Lupus Specialist

Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for...

Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bit...

Hurtingpains

•2 days ago

2 Replies

Southampton Lupus Centre of Excellence

Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?

Has anyone had experience of Dr Davidson at this clinic? I have my first appoint...

IsleofWight1

•3 days ago

2 Replies

Suddenly getting 'Restricted Access' across 'all HealthUnlocked Communities' and not understanding why

Sharing this in case it ever happens to anyone else. On Friday evening I went to check posts and got red banner messages saying that my access had become...

Sharing this in case it ever happens to anyone else. On Friday evening I went t...

StriatedCaracara

•3 days ago

4 Replies

Persistent trace/low level protein in urine

Hi all I've had persistent trace or low level amounts of protein in urine tests since April -checked on 5 occasions at hospital. Sometimes there is also trace...

Hi all I've had persistent trace or low level amounts of protein in urine tests...

Beau2016

•4 days ago

4 Replies

Shingles or lupus rash ?

Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary...

Hello I was wondering if anybody had any insight on what this rash could be? I a...

Ava0

•4 days ago

14 Replies

I am getting a kitten!!

Just thought I would post a happy event. I live alone - moved to the city I live in now for work at a local hospital. No friends or family. So, thought maybe...

Just thought I would post a happy event. I live alone - moved to the city I live...

Willow7733

•5 days ago

24 Replies

Pppp Pick up a Cutie

Hello EveryoneJust thought it was time for a fun cutie pic and here it is. I Hope you all agree. A groom at his wedding in Chester during the summer, decided...

Hello EveryoneJust thought it was time for a fun cutie pic and here it is. I Hop...

misty14

•5 days ago

12 Replies

Covid, Paxlovid and vomiting

Hello all. I tested positive for Covid, got prescribed Paxlovid and it's causing vomiting. Obviously a big problem with my other lupus meds. I've contacted the...

Hello all. I tested positive for Covid, got prescribed Paxlovid and it's causing...

Treetop33

•6 days ago

16 Replies

Insoles

I have Lupus but this question isn't strictly related to a Lupus symptom, so I hope that's okay. I had a stress fracture in my foot a couple of years ago and...

I have Lupus but this question isn't strictly related to a Lupus symptom, so I h...

BookishVibes

•7 days ago

11 Replies

No diagnosis

Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant...

Hi. I've been ill for a few years and twice had blood tests for Lupus but as all...

Pastalasta

•7 days ago

15 Replies

New pet

MorningHope you are as well as you can be. I'm going through a really tough time at the moment. Feeling really low and unloved. My husband bought me the...

MorningHope you are as well as you can be. I'm going through a really tough time...

JCZW

•9 days ago

34 Replies

iV hydrocortisone taper

I've just had surgery for lacerations to my lower half. As part of peri-operative care, my normal daily dose of 5mg methyl pred has been supplemented with four...

I've just had surgery for lacerations to my lower half. As part of peri-operativ...

whisperit

•9 days ago

20 Replies

Support for men living with lupus

We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we...

We are excited to partner with The Wren Project to pilot a group listening space...

nakita_cambow

Moderator•10 days ago

Be the first to reply

Rash on face not responding to steriods

Does anyone have an experience of repetitive skin flare ups on face and what worked for you to get it under control enough to allow skin to heal? Whilst...

Does anyone have an experience of repetitive skin flare ups on face and what wor...

smeackles

•10 days ago

26 Replies

UCTD?

Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but...

Hello ,Has anyone noticed that there now appears to be no reference to UCTD on t...

Narni21

•14 days ago

25 Replies

Mira and Bea

Hi folks I thought everyone could do with a Mira pic - with gorgeous Elvis In the background. I’ve actually changed my surname to Presley as he has always been...

Hi folks I thought everyone could do with a Mira pic - with gorgeous Elvis In th...

svfarmer

•16 days ago

55 Replies

Lupus and Perimenopause - Doctor

Does anyone have a recommendation for a rheumatologist that has a good understanding of HRT, peri and menopause? I am desperately looking for a consultant who...

Does anyone have a recommendation for a rheumatologist that has a good understan...

Dicko2006

•16 days ago

10 Replies

vertigo

can anyone please advice what to do about on going vertigo I take meds I do the exercises m now afraid to move around I stay I bed most of the times I will...

can anyone please advice what to do about on going vertigo I take meds I do the ...

Mystik

•17 days ago

7 Replies

progression

not sure I should post this here as dont know if anyone else suffers but as of late I feel like I can be sitting on a washing machine is only way I know how to...

not sure I should post this here as dont know if anyone else suffers but as of l...

stiff19

•17 days ago

12 Replies

Beauty Cutie

Hello everybodySorry that 'cutie pics' has been away this month but it had covid and had to rest. Luckily, it was a mild flu-like illness but as always for us...

Hello everybodySorry that 'cutie pics' has been away this month but it had covid...

misty14

•19 days ago

30 Replies

low moods

I am suffering from low moods, very emotional and overthinking which I think will be a mixture between my lupus and potentially perimenopause. I was wondering...

I am suffering from low moods, very emotional and overthinking which I think wil...

Newlupus76

•20 days ago

3 Replies

Writing to patients from rheumatology survey

A research team at Manchester University is conducting a survey to find out what people think about the letters doctors write after appointments (called...

A research team at Manchester University is conducting a survey to find out what...

nakita_cambow

Moderator•20 days ago

6 Replies

advice please 🙏🏻 feet and hand pain

hi everyone, it’s been a while since I have been on here as I have not been well. Serval things have happened to me especially in the last 12 months. I had to...

hi everyone, it’s been a while since I have been on here as I have not been well...

Fedupofpain27

•20 days ago

6 Replies

Shoulder saga

Hi all, as some of you know, I had surgery in March this year for a hernia. Since then I have had horrible burning pain in my shoulder. It’s not getting better...

Hi all, as some of you know, I had surgery in March this year for a hernia. Sinc...

MusicalFurbaby

•21 days ago

7 Replies

Transverse Myelitis

Does anyone else have experience of transverse myelitis? In February this year I woke up one morning and could not use my legs. This was quickly followed over...

Does anyone else have experience of transverse myelitis? In February this year I...

LittleSteve

•21 days ago

4 Replies

I wish appointments came with meeting agenda's

Long story short, everyone (NHS and private rheumatology and NHS dermatology) agree I need to change my medication to rituximab. I saw NHS rheumatology in July...

Long story short, everyone (NHS and private rheumatology and NHS dermatology) ag...

Diagnosis_Collector

•21 days ago

4 Replies

📚14-08-2024 Surprising mechanism of lupus kidney damage identified

I am wondering if lupus/UCTD patients are tested in their follow-up appointments about all these recent discoveries🤔 🧾 Key cells behind severe kidney damage...

I am wondering if lupus/UCTD patients are tested in their follow-up appointments...

Naladog

•21 days ago

2 Replies

Write a post or ask a question

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

Just curious, has anyone been diagnosed with COPD since being diagnosed with Lupus?

Possible Lupus?

Anyone take Saphnelo infusions? Would love to hear feedback...

Require a Lupus Specialist

Southampton Lupus Centre of Excellence

Suddenly getting 'Restricted Access' across 'all HealthUnlocked Communities' and not understanding why

Persistent trace/low level protein in urine

Shingles or lupus rash ?

I am getting a kitten!!

Pppp Pick up a Cutie

Covid, Paxlovid and vomiting

Insoles

No diagnosis

New pet

iV hydrocortisone taper

Support for men living with lupus

Rash on face not responding to steriods

UCTD?

Mira and Bea

Lupus and Perimenopause - Doctor

vertigo

progression

Beauty Cutie

low moods

Writing to patients from rheumatology survey

advice please 🙏🏻 feet and hand pain

Shoulder saga

Transverse Myelitis

I wish appointments came with meeting agenda's

📚14-08-2024 Surprising mechanism of lupus kidney damage identified

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive