not sure I should post this here as dont know if anyone else suffers but as of late I feel like I can be sitting on a washing machine is only way I know how to describe like vibrations inside which I notice when still ,waking up in mornings with feeling of very hot and sweaty. wavering fingers and tremor on off in right hand ,left hand is ok no tremor,and wrist getting skinnier right though possible beginnings in left wrist.. also a weird faint tight feeling either side of spine but lesser since steroids last year but still there.
Have bit the bullet and made an appointment with gp this morning and there is a new gp there so will be interesting. I initially had to try make an appointment online as no longer allowed to phone to make one as message diverts you to online . I was enquiring about recent myasthenia antibody test and received a text message saying to make an appointment to discuss results. from that I deduce all ok but there were no available appointments to be made up to December so I phoned surgery. receptionist then said there were no blood results back from this blood test. I said well I still would like an appointment re the above and now have one at the end of the month.
Written by
stiff19
To view profiles and participate in discussions please or .
does it ever ! interesting 🙏 my son has just had covid he asked if I was ok and I said yes I just feel a bit fluey and breathless ( have always been lucky ive never had covid) but now wonder if I did have from him 🤷♀️
This is the problem I have feel so rough most of the time id never know !
just read this that Yale have said about internal tremor post covid but not linked with external tremor as have in hand 🤷♀️ thanks for this I will ask my son too about this 👍xx
There was an article on here about 6 months ago about internal tremors. Don't know if you could still find it. Seems a lot of us suffer from it at some point! I haven't recently but have in the past. Hope you find some answers ❤️
Hi, I do have the 'internal tremors' sensation with external, obviously visual as well occasionally. Not all the time but frequently and visual usually with my left arm and hand. I associate it with extreme tiredness as well. It affects my handwriting.
I feel I've been in flare since a nasty episode of anaemia that rendered me almost bedridden in 2014/2015 and I think that's when the trembling feeling started.
My last 10 years have been one thing after another and as I'm now in my 70s when I mention this I feel it's dismissed as 'my age'.
I have been told in the last week after an MRI on my spine that I have muscle atrophy in that area and I thought, "yes, I know, I can feel it!"
I am on a cocktail of drugs including Azathioprine, hydroxychloroquine and Prednisolone and others and then currently ciprofloxacin for kidney infection. Could it be unavoidable interactions between drugs?
I'm not sure of the cause as you can probably tell but, having been diagnosed with SLE etc over 35 years ago, it's definitely a phenomenon that I didn't used to feel, as I managed to maintain a fairly normal life, but is now present most days of my life. 😊
sorry to hear this, yes its frequent with me when not visible tremor my fingers waver and move on right side the fingers also bend sideways.
Interesting you say a flare started the trembling as mine started when systemic things flared up (I have no diagnosis) . I also agree as we get older we are dismissed more , when my skin changes began I was told it was ageing (55) if you see the progression I had you would laugh as it was not ageing.
I in long flare of symptoms had kidney problems I think I had and still have now but minimal, not pain but tightness either side of mid spine, very dark urine like coke almost, some back bits in it and then frothy and lost hair on limbs swollen ankles and nausea. Neurologist then during covid wanted to do a 24 hour urine test but my gp would not provide container and so neurologist noted for porphyria test instead. prednisolone helped my urinary incontinence but still get urgency and frequency.
I wonder about my back too as always a faint tightening squeezing feeling, I have degenerating disc disease ,had one op many years ago, have fibrosis and years ago last scan they said I had fat eating into muscle🤷♀️ (thats how she described it).
over the years I have had lupus suspected , first time with problems and low white blood count etc but bloods ok and gp then diagnosed fibro (as was then criteria) and 6 years ago suspected not in bloods though so again told fibro but it doesn't fit so now fibro and ununifying diagnosis. despite help from pred and hydroxy. did hydroxy cause ptosis?🤷♀️ did stopping statins cause problems?🤷♀️ joint muscle vascular skin problems, bowel urinary problems muscle nerve problems , heart breathing problems🤷♀️ who knows, we seem to have so many questions and so little answers, NONE in my case.
sorry I send you best wishes 🤗🙏 at least we have each other here
your bio and replies are all very interesting and people you've spoken with, whilst hydroxy helped my joints yet caused possibly other symptoms I find it all interesting. your drug interactions are interesting question as is any drug side effects 🤷♀️🙏
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Veins and Lupus?
Edge of breast/Ribcage/Shoulder Blade Aches & Pains
Hospital Appoinment
I'm so tired of being tired and in pain!!!!
