hi everyone, it’s been a while since I have been on here as I have not been well. Serval things have happened to me especially in the last 12 months. I had to have a full hysterectomy due to pain/lupus.
I had a fall and dislocated my knee cap and damaged my ligaments on the inside of my left knee joint, unknowingly also damaged the lineaments in the calf and foot.
After being in a&e for 17 hours having this sorted I was back in hospital with severe pneumonia 3 days later (which I had caught in the hospital on my previous visit) I was very ill and at one point I was told after it was touch and go. I was in for a week and still poorly when they let me out but there was covid and flu on the wards so it was too dangerous for me to stay there.
I am suffering now with my hands and feet , swelling especially my feet, the pain in my feet is a weird one and I was wondering if anyone else suffered the same symptoms as I know we are all different. I cannot put my feet on the floor without excruciating pain to the point of not walking properly even the balls of my feet hurt when resting?
I am seeing my team in November (apparently I slipped through the cracks and they misplaced me for 18 months) and have bloods and scans on my feet and hands in September. Any suggestions help or tips would be really gratefully received.
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Fedupofpain27
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Hi, I had a similar situation where NHS did not help, and luckily I had health insurance and was able to get some help after my fall. 3 months after to be more precise. The pain in my knee and hip did not stop. We got an MRI and turned out I had a trauma 1 in my ligaments, and it gave me something called tendinosis, which is a very annoying and difficult to heal, it takes a very long time to heal fully. The private doctor advised physio, which was a very different physiotherapy than NHS, along with shockwave sessions. After the shockwave sessions, I am expected to wait around 16-20 weeks and if it does not heal I am supposed to return to see what else can be done.
For my swelling, I tend to try to keep my legs up. I have bought a massager that does some like a compression massage. I am unsure how it is called. Likewise, I wear compression socks which for me tends to help, I have all levels of compression. I haven't tried magnesium oil, but it is meant to help a bit. I have horrendous circulation issues.
Thank you for your reply. I'm sorry to hear you are suffering so badly and hope you get more help and ease of pain soon but at least I know I’m not alone in this. The tips you gave I will give them a go anything to help ease it
If there is oedema then important to also check heart and kidneys.
My mum had issues with her legs and NHS, (bless them) failed to treat heart issues until it was too late. By then she also had pulmonary odema. They are failing to pick on simple things.
As for kidneys I do my own checks for protein in urine.
Sorry about my tangential answer but if hospitals don't look for the obvious, then we are left to.
Unfortunately, my mum passed away because GPs, district nurses etc picked up only on things they visually saw and did not look beyond one issue at a time.
In hospital, being treated for haematoma on her leg, after being on A&E three nights she tested positive for covid but they said she was asymptomatic. They stopped testing by Day 10 and she was released to retirement flat where as a family we ensured she was away from others. My brother caught covid from her, although she was not supposed to have it or be contagious according to the hospital.
She died of multiorgan failure and age related infirmity ( cause given on death certificate), a month later after being rushed back to hospital. I think this was actually covid-related but there were underlying heart issues too.
Any odema on legs, and chest, should have rung alarm bells. Then she got covid in hospital too.
So sorry, your situation sounds really severe. I've never had as much pain as you describe in your feet but when my lupus was at its worst the soles of my feet did hurt after walking. My solution was to walk as little as possible.
As for hands, I still get hand pain after any use of my hands which my lupus decides is too much (e.g. squeezing lemons or carrying a bag of rubbish out to the bins). I try to be as careful as possible not to do anything that involves a big effort for my hands, and if I do overdo it and realise later that I've hurt myself, the only solution I've found is to let the sore part rest completely and wait for for the pain to subside (usually a few days for me).
It sounds like your situation might be different though, with everything you've been through. I really hope you find some relief!
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