Anyone take Saphnelo infusions? Would love to hea... - LUPUS UK

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Anyone take Saphnelo infusions? Would love to hear feedback...

amberb444 profile image
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Going to try the Saphnelo infusions.... has anyone had experience with this? Similar to Benlysta but not as much research out yet... thanks.

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Leslieprays profile image
Leslieprays

I just started my infusions. I have discoid rashes over 60% of my body, including my face. Nothing has cleared my skin. After one infusion, I noticed immediate changes, and in a week my face was cleared. I did have a small (very small - 3 pinpoint leisions) shingles outbreak - which is a side effect. I’ve had both shingles vaccination shots now, and completed my second infusion a week ago Friday.

Other than the tiny shingles, I haven’t had any side effects.

I hope it works as well for you!!

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