does anyone else’s clothes leave impressions on their skin?

[Sammie1392]

so this may be a weird one .

Everything I wear almost.. sports bras, pants , stretchy yoga pants, socks, bracelets… they all leave impressions on my skin.

Anyone else ?

[ThaisXG]

Yes, so I think I have Lypedema and it's very hard to get a diagnosis of this in the UK they confuse with Lymphedema

I think it's very bad circulation as well. If you go online and check Lypedema signs it's one of them. It's so hard

[Sammie1392 in reply to ThaisXG]

It looks like it cause large legs though?

[ThaisXG in reply to Sammie1392]

Lypedema not lymphedema, two different things,

[Sammie1392 in reply to ThaisXG]

I’m 150 lbs , my body is proportionate . I does have abnormal accumulation of fat anywhere . I don’t think it would be that for me… maybe I’m wrong though 🤔

[OldTed60]

I have had this in past but now only in my finger pads and backs of hands. For me it was widespread fluid retention I believe and due to having connective tissue disease extremes of hypermobile EDS and Systemic Sclerosis. I used to be nearly 14 stone when misdiagnosed and untreated. Then I lost a lot of weight when I developed severe gastroparesis and slow transit (now have a stoma) and, since being on mycophenolate for almost five years, no longer have this problem, apart from in my hands where it’s due to skin hardening with loss of padding.

[Sammie1392 in reply to OldTed60]

See when I google lipedema it says it’s abnormal fat in the lower limbs …. Is this wrong ? lol

[Sammie1392 in reply to Sammie1392]

Oops that was meant for below lol 😂

I have thought I may have hypermobiliy EDS because I meet all of the criteria . Maybe this why?

[OldTed60 in reply to Sammie1392]

Yes - this wasn’t my suggestion! 🙃

[sarahalice]

Hi . I have lipedema as well as lupus and everything leave marks.

[Sammie1392 in reply to sarahalice]

See when I google lipedema it says it’s abnormal fat in the lower limbs …. Is this wrong ? lol

[OldTed60 in reply to Sammie1392]

I read same and definitely not me either. I saw a masseur for fatty deposits that had tethered to my ribs after falls before the pandemic. She was anatomy trained and said that my chest felt like a cadaver’s! We researched independently and both decided this was lymphoedema- but due to my connective tissue disorder rather than any cancer surgery or treatments as commonly associated. Later a scleroderma specialist confirmed this theory and also diagnosed my hypermobility. I also have Sjogren’s but it’s not considered my main autoimmune disease anymore. I’m now 8 stone and it’s less apparent but I still get marks on my ankles and feet from socks or boots and deep indentations on fingers with anything I touch despite no visible swelling.

[sarahalice]

That's what it is. If you have slim legs then you could have water retention. Worth mentioning to your GP or specialist.

[Sammie1392 in reply to sarahalice]

Ya , I have slim legs . Still slim despite the pitting edema and it’s only on my shins. GP checked me out and has no clue why it’s happening because all labs are fine

[FredaN in reply to Sammie1392]

I also have slim legs, but get sock marks around my ankles that linger for hours/a day after they've been taken off. It doesn't look like I have obvious swelling or water retention, but I sort of assumed I must have. It's hard to tell, as it's not as if I measured my ankles before this happened!

I have darkened areas of skin where clothes are too, but they seem more permamant.

[sarahalice]

Definitely worth mentioning it to yr specialist. I'd leave them a message on their hotline. Hope you get it sorted