Dermatologist discharge after looking at photos sent current and historical and CT Contrast Dye reaction/Allergies

[KnitSewPurl]

Hi everyone, just thought I updated all and let you know that Dermatologist have discharged me but said I can make a self referral within 6 months if there is any further changes in my spots condition.

She did not think any of them represented Lupus type . Eventhough areas that were red and not scratched she said they were scratched. Oh , well just observe and see .

Btw, I reacted Iodine contrast dye, 2 weeks ago Mon and still in pain from it had a rash from the site of entry from the plaster which I don't normally rash up all very odd. When I was there I did mention to them that I hv contrast dye before and I hv reacted with it over 10 years ago and it was nasty reaction. Of course they refuse to believe me. So , I said go ahead do it . And see , the minute the dye went it the pain was excruciating in my arm and neck and I was having pain in my right eye as well. And felt really ill and sick. Head did not feel well at all. Quite heady .

I even told the Consultant that I am allergic to Iodine contrast dye.

So, I am wondering hv any of you been subjected to a contrast dye and been effected by it if so what was your allergic reaction and how did you get your allergies on to your notes.

[StriatedCaracara]

Hi KnitSewPurl

Sorry to hear of their failure to diagnose and liase to treat.

I was recently discharged by eye hospital monitoring choroidal lesion still undetermined but symptoms worsened - causing one-sided migraines stroke like symptoms when light hits it. Last two years no doctor has been available at scan appointments. Now they work remotely so impossible getting any answers.

Anyway they discharged and said to get reviews through opticians to monitor things. Actually relieved as optometrists have been better and more considerate and caring.

Regarding contrasts I had very bad reaction to Gadolinium used in a MRI two years ago. I wrote this post after reviewing literature. Sad more research has not been done to bring clinicians up to speed when treating us. As the percentage of patients like us is low they tend to ignore us I think

The rules they follow do not stipulate they need to treat us differently. I believe things need to change:

healthunlocked.com/lupusuk/....

If intravenous contrast does affect 2.2%, then that is one in fifty if us. To me this then should be red flagged as significant. My notes now say never to use Gadolinium but GP says need to always mention in case not read.