Most of us here will know the life-draining fatigue that often accompanies systemic autoimmune conditions. Many will have co-diagnoses of CFS or ME. For a long time, people with ME/CFS have argued that these are "real", medical conditions, rather than the effects of psychological dysfunction or deconditioning. And that treatments like Graded Exercise Therapy (GET) and CBT were not treatments for our fatigue condition. This has been the position of the ME Association and Disability Rights UK , amongst others, too. NICE was scheduled to release new guidance acknowledging all these points this week. However, at the last minute, it has come under intense pressure from the medical establishment and has decided to delay the publication of this new guidance indefinitely.
It seems clear to me that this is a clear example of how doctors still strive to interpret our reality for us, and where power really lies.