Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2021

Photo share

Dear all I was trying to upload a photo that barncown was interested in viewing regarding finger joint bleeds . I’ve tied all ways of uploading . I have...

Dear all I was trying to upload a photo that barncown was interested in viewing...

Willow1414

•3 years ago

1 Reply

Pets

Ok so I don’t have little cute cats or dogs but I do have a tortoise called Topsy who is approximately 50 and has been in our family for 45 of those years,...

Ok so I don’t have little cute cats or dogs but I do have a tortoise called Tops...

Hidden

•3 years ago

13 Replies

Fine crackles

Hi lovely people Follow up letter from rheumatologist said I needed CT of Chest as he could hear fine crackles . Never heard of this before and wondered if...

Hi lovely people Follow up letter from rheumatologist said I needed CT of Chest...

Tiggywoos

•3 years ago

12 Replies

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New research for immunosuppressed and covid vaccine

This is relevant to many of us: https://www.medpagetoday.com/infectiousdisease/vaccines/91631

This is relevant to many of us: https://www.medpagetoday.com/infectiousdisease/...

ShannonB

•3 years ago

16 Replies

Need Sjogren's advice

Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your...

Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist ...

Piscesdreamer

•3 years ago

25 Replies

Hearing problems post covid vaccination?

Hi all, how are you all? Hope you’re keeping safe and well (or as well us we can be). Just wanted to ask a quick question, has anyone had any ear problems...

Hi all, how are you all? Hope you’re keeping safe and well (or as well us we ca...

Froggie70

•3 years ago

15 Replies

Cutie Combo

Hello everyone Just had to post these two cuties in their woollies. They're newly born so feel the cold. Hope your spirits are higher this week as we've made...

Hello everyone Just had to post these two cuties in their woollies. They're newl...

misty14

•3 years ago

34 Replies

Need APS Specialist in Daytona Beach FL USA area

Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS...

Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area car...

Piscesdreamer

•3 years ago

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Joint bleeds

Hi Barncloud These are just a few pictures , like you , these bleeds just happen with no previous injury .

Hi Barncloud These are just a few pictures , like you , these bleeds just happe...

Willow1414

•3 years ago

10 Replies

Side effects of plaquenil

Hey all, hope you're doing well. I started plaquenil about 3 weeks ago. At first I was fine, but around 3 days ago I started having trouble sleeping (very...

Hey all, hope you're doing well. I started plaquenil about 3 weeks ago. At first...

leentheexplorer

•3 years ago

4 Replies

Lupus and episcleritis or scleritis?

Hi everyone I hope you are ok. Please can I check has anyone with severe lupus on immunosuppressants and prednisolone already had episcleritis or scleritis...

Hi everyone I hope you are ok. Please can I check has anyone with severe lupus o...

Andfiona

•3 years ago

12 Replies

😂😂😂😂❤️

I’m sure everyone can relate to this - i for one am feeling totally exhausted today 🥰

I’m sure everyone can relate to this - i for one am feeling totally exhausted to...

svfarmer

•3 years ago

12 Replies

Is it lupus related?

I was diagnosed with inflammatory arthritis last year, never pin pointing an exact diagnosis like RA or lupus. I’ve been treated on Hydroxy for 9 months which...

I was diagnosed with inflammatory arthritis last year, never pin pointing an exa...

BethRidout24

•3 years ago

10 Replies

steroid injection

just had steroid injection for ostioathriturs as part of lupus can i still have covid vacine in 6 weeks

just had steroid injection for ostioathriturs as part of lupus can i still have ...

lindaramsden26

•3 years ago

2 Replies

Anyone out there with blood clots in leg?

I am a little worried that my left leg is still larger than my right. Will the swelling ever completely go away?? It is not as bad as it was, but I can see a...

I am a little worried that my left leg is still larger than my right. Will the s...

Willow7733

•3 years ago

3 Replies

Lupus & Coronavirus (COVID-19) - UPDATED (19/03/2021)

We have updated our information and guidance about lupus & COVID-19 at https://www.lupusuk.org.uk/coronavirus We've also updated our guidance about vaccination...

We have updated our information and guidance about lupus & COVID-19 at https://w...

Paul_Howard

Partner•3 years ago

4 Replies

Schnauzer sculptures ❤️

Thought I would share with you my beautiful sculptures of Bea and Mira, my sons girlfriend made them, this is her first attempt of making anything with clay -...

Thought I would share with you my beautiful sculptures of Bea and Mira, my sons ...

svfarmer

•3 years ago

32 Replies

Suddenly just feel unwell anyone else get this??

Hi, does anyone else suddenly just get where they feel rubbish and flu like from nowhere? Feel like u have a fever but u don't and entire body hurts and joints...

Hi, does anyone else suddenly just get where they feel rubbish and flu like from...

Sara_A

•3 years ago

18 Replies

ILL HEALTH RETIREMENT

Hi, I would really appreciate some advice. I have been diagnosed with mild SLE and am applying for ill health retirement from the civil service- Alpha...

Hi, I would really appreciate some advice. I have been diagnosed with mild SLE ...

Rockgrrl

•3 years ago

31 Replies

LUPUS UK News & Views Magazine - Spring 2021 - OUT NOW

The spring 2021 edition of our magazine is out now and has been posted to all LUPUS UK members. For more information about this issue please go to...

The spring 2021 edition of our magazine is out now and has been posted to all LU...

Paul_Howard

Partner•3 years ago

Be the first to reply

Lupus nephritis - fluid retention?

Hello I'm on 3000mg Mycophenolate daily (along with other medication for SLE) and have an appointment with Nephrology towards the end of April. I appear to...

Hello I'm on 3000mg Mycophenolate daily (along with other medication for SLE) an...

Laurajoy

•3 years ago

18 Replies

When are we actually allowed out? I’m confused

Morning, sorry if I’m sounding a bit stupid but I heard that shielding for the clinically vulnerable comes to an end on March 31 but I have read somewhere that...

Morning, sorry if I’m sounding a bit stupid but I heard that shielding for the c...

MoominMomma

•3 years ago

19 Replies

Lack of support for NHS employees with SLE - many lose their jobs

I did some work with Liz Hunt and Liz Price (both from HULL university) - focused on NHS employees and their experiences of work in the NHS. It was sad (but...

I did some work with Liz Hunt and Liz Price (both from HULL university) - focuse...

Milliecox

•3 years ago

9 Replies

Vaccine

At last my sister and I had our 1st vaccine today. It was definitely the Oxford one, some of you may remember last time, they were insisting on us having the...

At last my sister and I had our 1st vaccine today. It was definitely the Oxford ...

Cal66

•3 years ago

11 Replies

Does this look like a Malar Rash?

I have Joint pain, hand and finger numbness, Fatigue, Headaches, night sweats, nasal sores in the winter and mild nausea. I have had several tests done and I...

I have Joint pain, hand and finger numbness, Fatigue, Headaches, night sweats,...

clskz89

•3 years ago

8 Replies

Journey to diagnosis

Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for a year now. I’ve got multiple health conditions and understand that it takes a...

Hi everyone, hope you’re ok. I’m new here and have been under rheumatology for ...

Hidden

•3 years ago

7 Replies

Lupus rash

Hi, I fairly new to this platform. I think it’s great to know how people are managing lupus and their experiences. I have been diagnosed with lupus SLE...

Hi, I fairly new to this platform. I think it’s great to know how people are m...

Turquoise1999

•3 years ago

13 Replies

hydroxychloroquine

Hi I am taking hydroxychloroquine I am get a lot of acid or heartburn everything I eat or drink burn anyone got any ideas to stop it thanks

Hi I am taking hydroxychloroquine I am get a lot of acid or heartburn everythi...

diane46

•3 years ago

20 Replies

LUPUS UK Live Virtual Seminar - "Lupus and the Brain" - 6pm (GMT) Wednesday 17th March 2021

Hi everyone, Our next live virtual seminar will be at 6pm (GMT) on Wednesday 17th March 2021. This next event will be on the topic "Lupus and the Brain" with...

Hi everyone, Our next live virtual seminar will be at 6pm (GMT) on Wednesday 17t...

Paul_Howard

Partner•3 years ago

17 Replies

Benadryl tablets for hive looking lupus rash

Hello, I hope all are safe and keeping well? I’ve only been diagnosed few months ago and still learning lots about Lupus and how to manage it. Has anyone...

Hello, I hope all are safe and keeping well? I’ve only been diagnosed few mont...

MadT

•3 years ago

16 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2021

Photo share

Pets

Fine crackles

New research for immunosuppressed and covid vaccine

Need Sjogren's advice

Hearing problems post covid vaccination?

Cutie Combo

Need APS Specialist in Daytona Beach FL USA area

Joint bleeds

Side effects of plaquenil

Lupus and episcleritis or scleritis?

😂😂😂😂❤️

Is it lupus related?

steroid injection

Anyone out there with blood clots in leg?

Lupus & Coronavirus (COVID-19) - UPDATED (19/03/2021)

Schnauzer sculptures ❤️

Suddenly just feel unwell anyone else get this??

ILL HEALTH RETIREMENT

LUPUS UK News & Views Magazine - Spring 2021 - OUT NOW

Lupus nephritis - fluid retention?

When are we actually allowed out? I’m confused

Lack of support for NHS employees with SLE - many lose their jobs

Vaccine

Does this look like a Malar Rash?

Journey to diagnosis

Lupus rash

hydroxychloroquine

LUPUS UK Live Virtual Seminar - "Lupus and the Brain" - 6pm (GMT) Wednesday 17th March 2021

Benadryl tablets for hive looking lupus rash

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