Fine crackles : Hi lovely people Follow up letter... - LUPUS UK

LUPUS UK

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Fine crackles

Tiggywoos profile image
12 Replies

Hi lovely people

Follow up letter from rheumatologist said I needed CT of Chest as he could hear fine crackles . Never heard of this before and wondered if anyone could put it into context with regards to mixed connective tissue disease ?

Take care and thank you as always ! X

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Tiggywoos profile image
Tiggywoos
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12 Replies
Littleandperfect profile image
Littleandperfect

Morning Tiggywoos..I too have crackles ... wheezing and creaking noises on left hand side of chest ... 😖my Grandson says I sound “ as if I’ve swallowed a 🐭 mouse !! However, my chest X-ray was clear.. and Doc decided It didn’t warrant antibiotics... just come off steroids completely after 2 years 😫so feeling rough anyway .. makes me very breathless and mucousy... forever clearing my throat with an annoying cough 😷 hope this helps.. have a good day

Tiggywoos profile image
Tiggywoos in reply to Littleandperfect

Morning Littleandperfect many thanks for your reply . Do you mind me asking if you have a lung condition ? Glad your X-ray was clear but horrid for you to feel breathless . Take care

Littleandperfect profile image
Littleandperfect in reply to Tiggywoos

Hi again.. well I didn’t have any 🫁 lung issues till I was diagnosed with wretched lupus!! 😫.. the steroids helped a lot I now realise... and I’ve been congratulating myself for coming through all the horrid withdrawal symptoms !! Got a telephone dermatologist call next month so fingers crossed 🤞 no flare before then !!

Littleandperfect profile image
Littleandperfect

To add to my previous reply.. if anyone else on here “ sounds like the e swallowed a 🐭 mouse” please do let me know what your Doc did about it ? If anything? Thanks 🙏

Spanielmadlady profile image
Spanielmadlady in reply to Littleandperfect

I have lung issues after pleurisy in both lungs and 6 bouts of pneumonia in 5 years which later turned out to be a major lupus flare they refused to acknowledge.as a result i have bronchiectasis so I'm very familiar with crackles and railes.im prescribed a prophylactic antibiotic 3 times a week and carbocisteine to keep my lungs clear .I'm still on prednisolone.lupus is known to affect the lungs (pulmonary lupus) and strange to say I've had fewer problems since being on my lupus meds ! X

Tiggywoos profile image
Tiggywoos in reply to Spanielmadlady

Thank you so much that’s helpful and informative 🤓. Blimey 6 bouts of pneumonia must of been blooming awful . So glad you’ve had fewer problems since been on lupus meds xxx

Spanielmadlady profile image
Spanielmadlady in reply to Tiggywoos

All were hospital admissions i also had right base atelectasis ( lung collapse) but you know how to goes...it was in my head...still haven't worked out how I can imagine pneumonia lol.anyway I refused to see respiratory at my local hospital and now travel to preston.Crackles are caused by excess fluid.

Keep smiling xxxx

Tiggywoos profile image
Tiggywoos in reply to Spanielmadlady

Yes because we are really good at making things up aren’t we 🤦‍♀️. Enjoy the fresh air today on your walk . 😊xx

Spanielmadlady profile image
Spanielmadlady in reply to Tiggywoos

Thank you.. will do college run first xxx

Littleandperfect profile image
Littleandperfect in reply to Spanielmadlady

Thanks very much for that info.. it really helps to know which meds you take 👍 I do appreciate you taking the time to reply

Spanielmadlady profile image
Spanielmadlady in reply to Littleandperfect

Think I'm abit of extreme case but that's what ignoring me for 5 years did 😡 I've also had a larnyxoscopy recently which showed my voice box is hypersensitive so with a quick sniff and 2 quick blows out through the pursed lips you can also help coughs x

Littleandperfect profile image
Littleandperfect in reply to Spanielmadlady

Oh ! I’m sniffing as we speak ! 👍🫁🤧

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