Does this look like a Malar Rash?

[clskz89]

I have Joint pain, hand and finger numbness, Fatigue, Headaches, night sweats, nasal sores in the winter and mild nausea. I have had several tests done and I was told I had fibromyalgia, which i am not sure i believe. My ANA was negative about year ago and all other tests come back normal. I just want to to get it figured out so i can get my life back 😩

[puffyface]

Take that picture to your doctor. Ask them to test your Ana again. It’s often a long process to diagnosis.

[CecilyParsley]

Hi puffy face is right keep documenting your symptoms ( however insignificant or unrelated they might seem), take photos of any rashes, swellings etc. This is a wonderful forum to get advice, share experiences etc. I am so sorry that you are suffering. Don’t give up looking for answers. You are unwell they just need to find what it is that is making you that way. Good luck xx

[Krazykat26]

Totally agree with the others here clskz 🤗U definitely have something going on so now us the time to contact your doctor!!

When you're recording symptoms note everything..what you've eaten..what the weather's like..how you're feeling generally..many things can cause a flare up n by recording episodes we can often try n piece bits of the puzzle together..over time though..there's no quick fixes unfortunately 😔

Another thing..do u feel unwell in the sun? Many of us ( myself included) have photosensitivity to UV rays n have to take precautions in the sun ..wearing sunscreen n a hat..shades. etc so it would be a good idea to start protecting yourself..weird I know but lupus is like that!!

One more thing..you're a very pretty young lady!! I'm not being weird..just paying u a compliment 😹🌈😽😽xx

[chrisj]

You poor old love....looks like Lupus to me but your gp is the best person to see. The numbness, fatigue, night sweats and nasal sores are all very familiar to me. I was diagnosed with SLE in 2005 after feeling unwell for some time. Later diagnosed with Sjogrens and that accounted for white toes and fingers, also the nasal sores.

Night sweats were so bad I had to get up one night and have a shower and change of pyjamas. I was sleeping sleeping round the clock, the fatigue was so bad. A locum sent me off for urgent blood tests which came back positive for SLE. Please go back to your gp xxx

[KayHimm]

Take your temperature regularly. Fever can help to differentiate between fibromyalgia and possible autoimmune disease.

Is it possible for your GP to send you to a dermatologist?

You are really struggling. Fibromyalgia unto itself is apparently disabling. Lupus patients get fibromyalgia too. They will probably keep testing you to see if your labs change. Many of ours turned positive.

Feel free to come here any time. Let your doctor know of any new symptoms. Very important.

Good luck

K

[Hidden]

Sadly it does look like a classic lupus malar rash but....🤔you need a host of confirmatory lupus tests.

Get your GP to refer you to a specialist lupus doc for all the tests eg. ANA, anti ds DNA etc etc.

[Willow1414]

Dear Clskz89

Looking at your rash it does look sore and uncomfortable , lupus butterfly rash/malar rash does tend not to be on the nasal folds ,it does look a bit like rosella rash ? But might be wrong , I think you should request your doctor to refer you to a dermatologist , they would be best at diagnosing your facial rash . You could try using factor 50 and seeing if it helps , if this helps it may well be photo sensitive rash , either way I do hope you can get some answers and treatment .

🦋❤️

[clskz89]

Everyone here is so nice and helpful! I am actually sitting in my truck waiting to go into my GP now. The rash comes and goes. Its already gone. I noticed i get after some time in the sun. When i was "diagnosed" with Fibromyalgia, my GP never ran any tests or did much of anything she simply put me on a nerve pain medication and since it was helping at the time she decided it was Fibro. I will be requesting a series of blood work and a referral to a Rhumetoid specialist. Can i ask what your symptoms were like when you were trying to get diagnosed? Thanks again everyone!!! 🥰🥰🥰