Lupus?

[MariBrandt]

Hi Eeveryone,

I’m new here, I’m 28 years old Russian girl who lives in London. In February I developed mild rush (redness) over cheeks but didn’t pay much attention (it was my ovulation so I thought it’s hormonal). Later in March I had cold symptoms with pain in ribs and low grade temperature. No rush. Then rush was in April. No other symptoms. In the beginning of June I developed this rush and one day had fatigue (went to sleep at 6pm and was sooo tired with no reason). Then headache appeared for 3 days it didn’t go. I called my GP and he scheduled blood test and it all came normal. Then headache gone and I started to have toothe ache. My dentist without seeing me prescribed Metronidazole. After taking it for 2 days I started to have painful urination and bladder pain. So Gp said to stop it and take amoxicillin for 7 days. On the 2nd day of amoxicillin I started to feel like my hands and feet burning and numb. Then stated to experience pain in my fingers,ribs, toe,tendons over the knee were burning and had lumps. My hair started to fall down. After 5 days of amoxicillin I stoped it (I thought all of this side effect of antibiotics). Rush on the face only appeared for 1-2 days just before period. The symptoms of arthritis stayed for another two weeks but more mild. GP wasn’t helpful. I decided to book a private reumothologist and after send me (I had no rush ) and he just checked things and said I’m healthy. I said about lupus he said it would show in normal blood test (?). After a week I started loosing coordination and my jaw joints were painful when touching, my vision was distorted too. Went to A&E and they said it’s vertigo because liquid in my ear and should go. So vision came back and pain too. After this I was ok , symptoms were disappearing and coming slightly. 2 weeks ago rush on my face came back and 3 days ago fingers migrating pain came with pain in ribs and sore throat and today tendons stared to burn again . GP said she doesn’t want to test me for autoimmune yet. Also had a private swab and they found Ureaplasma. Interesting thing I had some discharge and pain in bladder 3 days ago after that all symptoms came back. Today over the phone GP said very unlikely Ureaplasma causing this but I did read it can. Not sure what to do. I’ll attach pictures of rush 2 weeks ago

[Spanielmadlady]

Hi lupus doesnt always show up in normal bloods.if I was you I'd write down everything...every ache,pain,symptom,feelings and keep photo of your face then go back to your gp.ask to be sent to a rheumatologist. You need full bloods inc DS-DNA, ANA ,immunoglobulins and compliments.good luck hope you feel brighter soon x

[MariBrandt in reply to Spanielmadlady]

Hi thank you for your reply! GP said it would definitely show in normal blood I presume she thinks I’m making things up. She said it would take 3 months before I can see free rheumatologist... I was at private one a month ago and he didn’t schedule anything for me he said I’m absolutely healthy just looking at me. But when I seen him I didn’t have rush.

[Spanielmadlady in reply to MariBrandt]

We are frequently told it's all in our heads that's why you've got to stand your ground.lupus isnt diagnosed on bloods alone its should also be diagnosed on symptoms and urine.ive never had a rash yet my blood antibodies positive in 2016 but are now negative I also had blood in my urine which lead to a diagnosisof lupus in my kidneys .there is a specialist lupus centre at guys and st Thomas

[KayHimm]

I think what the rheumatologist means is that lupus usually produces abnormalities in blood work if the person is feeling unwell. That doesn’t mean it is diagnostic. He may have felt on exam and by looking at your labs that you don’t appear to have lupus at this time. Had he run the very expensive diagnostic tests, you may have had to pay for them. So he used his clinical judgment.

Maybe you should stay in close contact with your GP. Symptoms with autoimmune disease evolve over time. Keep a record of fevers, photos of rashes and symptoms.

Best of luck with this.

K