After being off the hydroxy since the beginning of the week due to possible side effects, I have seen my GP and have managed to get a pack of the Blackrock brand. I will see if this makes any difference to my extreme fatigue/nausea/insomia/lack of appetite/ dry mouth symptoms.
I am beginning to think that the symptoms are caused by the connective tissue disease rather than the brand but it is impossible to say for certain as symptoms overlap with possible side effects.
I have felt poorly all week and have spend part of each day in bed too exhausted to do anything yet unable to sleep. My husband and I were planning to take our two daughters aged 10 and 15 away on holiday next week but decided against it.
I am feeling very low in myself and after discussing things with the GP who was very understanding am now on anti-depressants. I have taken them before after I had post concussion syndrome following a head injury 13 years ago so at least I am familiar with potential side effects. I know that they take a while to kick in but at the moment I am up for anything that may help.
The rheumy nurse is trying to get me seen as a day case and mentioned the possibility of a steroid injection to help. If it is offered I will jump at the chance. Has anyone had positive experiences of this and if so how long did the benefits last? I am hoping that this will help whilst the hydroxy builds up on my system.
Thank you to everyone for reading this and to all who commented on my previous post. x