Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2019

Have I got Lupus

Hi Guys I have been having tests done as i have been suffering from pain for over a year now. Yesterday the doc said the Lupus test has come back positive. He...

Hi Guys I have been having tests done as i have been suffering from pain for ove...

Rachel-46

•5 years ago

8 Replies

Lupus and the sun

Does anyone else develop skin rash and get sick after exposing to the sun a little time. I don't know why I often get sick after sun exposure. This also...

Does anyone else develop skin rash and get sick after exposing to the sun a litt...

Annmilton

•5 years ago

9 Replies

Is this right? Can anyone help me

I was diagnosed with lupus a year and a half ago. I took a bad turn last year where it affected the brain, very scary time but okay now. I have been diagnosed...

I was diagnosed with lupus a year and a half ago. I took a bad turn last year w...

Eileenmc63

•5 years ago

13 Replies

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Any ideas on secondary vasculitis? Rashes?

Hello, anyone had anything similar to this photo please or any ideas?? Just been to urologist to try to get to bottom of blood and lots of ‘debris’ in urine...

Hello, anyone had anything similar to this photo please or any ideas?? Just been...

Melba1

•5 years ago

25 Replies

Rant needed!

I have been told I have UCTD, thyroid problems & also Raynauds. (Unfortunately I also have a benign brain tumour which I've deferred treatment for at present...

I have been told I have UCTD, thyroid problems & also Raynauds. (Unfortunately ...

Angiedj

•5 years ago

12 Replies

Hidden Illness

I met Polly Atkin at a poetry reading last year. I was reading the following today and thought that it was worth sharing:......

I met Polly Atkin at a poetry reading last year. I was reading the following tod...

Kevin53

•5 years ago

4 Replies

I'm having a party n you're all invited!!

Hi everyone I had dermy appt today n there's no change in my meds..keep going as I am..whoopeee!! At last they seem to be helping. I've had a busy year trying...

Hi everyone I had dermy appt today n there's no change in my meds..keep going as...

Krazykat26

•5 years ago

36 Replies

Hydroxychloroquine

Hi, Has anyone been taken off their hydroxychloroquine? I’ve been on it 3 months. I have awful side effects: myosotis, itch, myopathy, headache, vomiting,...

Hi, Has anyone been taken off their hydroxychloroquine? I’ve been on it 3 months...

Greentomatoes

•5 years ago

13 Replies

REMISSION.

Hiya! I've been diagnosed with Lupus with Nephritis about a year ago and I've been on steroids since then though the dose varies now. My physician told me that...

Hiya! I've been diagnosed with Lupus with Nephritis about a year ago and I've be...

salty_yogurt

•5 years ago

3 Replies

Hi. I'm Migskian

Diagnosed with Lupus erythematosus and lupus niphritis of the kidneys stage 4. Struggling with losing too much weight. I'm now very thin. Also the malar rash...

Diagnosed with Lupus erythematosus and lupus niphritis of the kidneys stage 4. S...

Migskian

•5 years ago

1 Reply

Finally a diagnosis

Hi all I’ve been reading this site for a while now and have decided to tell my story,16 years ago I stated getting terrible prickly heat,since then I have...

Hi all I’ve been reading this site for a while now and have decided to tell my s...

Tenerife1962

•5 years ago

8 Replies

Hearing loss update

So I had bloods done this morning for all my makers but wasn’t expecting to hear from my gp until Thursday when she got the results back. But she rang me this...

So I had bloods done this morning for all my makers but wasn’t expecting to hear...

lisa___s

•5 years ago

21 Replies

Pip mandatory reconsideration request

Hi everyone, I thought I’d get the CAB to help me with this Pip mandatory reconsideration request, but they couldn’t. I’m confused. Should I just send a simple...

Hi everyone, I thought I’d get the CAB to help me with this Pip mandatory recons...

LilyMistri2

•5 years ago

8 Replies

And relax....

Hi everyone, As part of managing my condition I have taken up meditation or mindfulness. I have been trying out smartphone apps. My top 3 at the moment (free...

Hi everyone, As part of managing my condition I have taken up meditation or mind...

MarkJT

•5 years ago

6 Replies

Rituximab wait 😫

I have been treated with 6 monthly rituximab infusions now for two years with good results , now became of a backlog in rheumatology im 2 months overdue. I am...

I have been treated with 6 monthly rituximab infusions now for two years with go...

weathervane

•5 years ago

46 Replies

Is anybody having trouble getting Zentiva?

I prefer Zentiva over Quinoric, but my pharmacist is having trouble getting it - apparently the suppliers just keep delivering quinoric even though my...

I prefer Zentiva over Quinoric, but my pharmacist is having trouble getting it -...

ProfessorMcGonagall

•5 years ago

7 Replies

Skin

Hi i have lupus and fibro. No one can tell me what these marks are on my skin. I had a biopsy done on my leg and it came back ok but they really put me off...

Hi i have lupus and fibro. No one can tell me what these marks are on my skin. I...

kate47

•5 years ago

7 Replies

I am struggling

Hello everyone and a happy new year. My title sums up my current state. My PIP has been stopped last year. Suddenly the rug was pulled off my feet, it was...

Hello everyone and a happy new year. My title sums up my current state. My PIP h...

ijeasike

•5 years ago

4 Replies

Never run a temperature

Hi Everyone. I just wondered if anybody else never really runs a temperature even when they are ill? I have infections and I even had sepsis but my...

Hi Everyone. I just wondered if anybody else never really runs a temperature eve...

Nickyt79

•5 years ago

27 Replies

Sinuses

Hello everyone.... I'm just wondering if any of you suffer badly with sinus infections and have been told it's related to your Lupus? My Ent Dr has said that...

Hello everyone.... I'm just wondering if any of you suffer badly with sinus infe...

Nickyt79

•5 years ago

14 Replies

Debilitating tension headaches for about 6 months. MRI results ok, now what?

I had an MRI last week and my rheumatologist sent a letter saying it showed "no significant abnormalities". My next rheumy app is in march. What happens now? I...

I had an MRI last week and my rheumatologist sent a letter saying it showed "no ...

eescvc

•5 years ago

11 Replies

A blood wolf moon tonight

If you're sleepless tonight and like to invest your suffering with a little glamour, why not indulge in a bit of moon worship? A total lunar eclipse is...

If you're sleepless tonight and like to invest your suffering with a little glam...

whisperit

•5 years ago

14 Replies

A bit of a random one, has anyone had to invest in a decent mattress? I wake up in so much pain, could this be the cause 😏

If I lay on my sides I wake up with crippling hip and knee pain, lay on my front I get crippling pain around my waist and if I try to sleep on my back I have...

If I lay on my sides I wake up with crippling hip and knee pain, lay on my front...

Lisalou19

•5 years ago

27 Replies

Raised liver enzymes?

Hi As I've posted before I was diagnosed with SLE in December. I've just received a letter from the rheumatologist saying that in the latest blood tests my...

Hi As I've posted before I was diagnosed with SLE in December. I've just recei...

bleeny

•5 years ago

13 Replies

Simple cold.

A very minor question really, having repeated colds and chest infections this winter already, can some one tell me why I still have a cold two weeks after it...

A very minor question really, having repeated colds and chest infections this wi...

Gillyg

•5 years ago

3 Replies

Food

Does anyone else suffer from not being able to eat much? Also any suggestions on what to eat to help? In a rough patch of not being able to eat much atall lost...

Does anyone else suffer from not being able to eat much? Also any suggestions on...

Hidden

•5 years ago

12 Replies

Plaquenil, and now Amitriptyline

Hi, I posted here 4 months ago after my first Rheumatologist appointment. At that appointment ,I was told I have Fibromyalgia and(I feared Lupus as I have a...

Hi, I posted here 4 months ago after my first Rheumatologist appointment. At th...

patmackfin

•5 years ago

14 Replies

Any Advice/ Experience with a Colonoscopy?

My GP has put me on the 2 week fast track for a colonoscopy, so I had to Uber myself to the hospital for a blood test to check on my kidney function because of...

My GP has put me on the 2 week fast track for a colonoscopy, so I had to Uber my...

Lupiknits

•5 years ago

24 Replies

I’m deaf!

Two weeks ago on Monday I suddenly went deaf. I’m really struggling and stressed. I’ve done some research and found out about a autoimmune disease called...

Two weeks ago on Monday I suddenly went deaf. I’m really struggling and stresse...

lisa___s

•5 years ago

32 Replies

Don't seem to have any quick access to healthcare prof!

Hi , feel stupid saying this but I struggle to see/ talk to anyone and when I do get rheumy appt he only wants to take bloods and that's it. I am lucky that...

Hi , feel stupid saying this but I struggle to see/ talk to anyone and when I do...

Jbo16

•5 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2019

Have I got Lupus

Lupus and the sun

Is this right? Can anyone help me

Any ideas on secondary vasculitis? Rashes?

Rant needed!

Hidden Illness

I'm having a party n you're all invited!!

Hydroxychloroquine

REMISSION.

Hi. I'm Migskian

Finally a diagnosis

Hearing loss update

Pip mandatory reconsideration request

And relax....

Rituximab wait 😫

Is anybody having trouble getting Zentiva?

Skin

I am struggling

Never run a temperature

Sinuses

Debilitating tension headaches for about 6 months. MRI results ok, now what?

A blood wolf moon tonight

A bit of a random one, has anyone had to invest in a decent mattress? I wake up in so much pain, could this be the cause 😏

Raised liver enzymes?

Simple cold.

Food

Plaquenil, and now Amitriptyline

Any Advice/ Experience with a Colonoscopy?

I’m deaf!

Don't seem to have any quick access to healthcare prof!

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