I am struggling : Hello everyone and a happy new... - LUPUS UK

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I am struggling

ijeasike profile image
4 Replies

Hello everyone and a happy new year. My title sums up my current state. My PIP has been stopped last year. Suddenly the rug was pulled off my feet, it was scarry but by God's grace we are surviving.

My mum had to get job ( nights shifts or long dat 8am-10pm) . So i have to get up early and take my son. I also started looking for a full-time job vigorously but i know i cant do full-time.

My year started with a 1week infusion. I was sick in my mum's car on friday and i feel like rubbish till now. My mum is doing the cooking, shopping and now work to make sure we eat

I am tired, in pain , my mum is exhausted from work. Because i try very hard to do what i can when can sometimes i think she forgets that am still ill. She fills she goes out to work and still has to cook or do house chores. I do understand that feeling but i have learnered to accept this illness. If i am unable to do something, i physically can't. I do forget things alot, i have lost 2 combs of my son. I get him ready for school and take him to school. That morning activities am exhausted by Saturday. I want to work and function like a normal person. I have a voluntary job but i have not been able to resume because of my health.

I dont blame carers that after years of the same illness. It would be easier if the illness has a period it stops.

I will take life easy, take one day at a time. Accept what i can and can't do. Please pray 4 me.

Xxx

Ije

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ijeasike profile image
ijeasike
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4 Replies

Hi ijeasike

Sorry your feeling so unwell what are disgusting system to stop your PIP

Have you appealed or put a mandatory reconsideration.

Please contact your local welfare rights as they deal with benefits.

Most of us that claim PIP Have had to go for mandatory reconsiderations and appeals To get the money much needed hope you feel better soon

ijeasike profile image
ijeasike in reply to

Yeah am in the process of getting the payments back . But am just sad with my health. Thanks

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK in reply to ijeasike

Hi ijeasike ,

Is your consultant aware that you are struggling so much at the moment? Could they adjust your treatment regimen to see if it helps to control your symptoms better?

ijeasike profile image
ijeasike in reply to Paul_Howard

I was meant to see him 2 days ago but the snow was bad in Bolton so i had to cancel and wait to rescheduled appointment to be sent .

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