Skin

[kate47]

Hi i have lupus and fibro. No one can tell me what these marks are on my skin. I had a biopsy done on my leg and it came back ok but they really put me off showing my body ie. Swimming. Can anyone help?

[honeybug]

Hi kate47

Wow that looks painful.

I would go to a dermatologist and get tested. If you’ve been dismissed by ANY doctor DON’T let them put you off getting diagnosed and treatment. Just keep going to them until you find one that listens and really cares about your welfare.

Lupus can cause so many symptoms. Because it’s an autoimmune condition you also might be having other autoimmune problems unrelated to Lupus. A Rheumatologist would be the one to diagnose you for other AI conditions.

Since early diagnosis and treatment is key to preventing damage to our organs don’t put it off. Our lovely friend EOLHPC is proof of just how damaging untreated AI conditions can be. Bless her...she is a miracle at surviving this and a blessing to us all with her willingness to care and share her saga.

In the meantime you take care and don’t give up on getting your problems addressed properly and making your health/life the best it can be.

Love 💕 hugs 🤗 kisses 😘 and prayers 🙏

EJ 😊🌿🌸🦋😇🕊

[MarkJT]

Hi kate47

Ouch! I get a similar rash on my leg (very itchy at times) and have been told it's discoid lupus.

Best wishes.

Mark

[kate47]

Thank you for your help. The rash is neither sore or itchy,just very unsightly. I have it on my arms,legs and chest so far. I think I'll visit the doc again.

[panda2]

Hi kate47,

It's really good you've got a picture in case it disappears by appointment time.

I specifically wanted to comment with regards to the feeling that it's unsightly and about swimming. I'm a swimmer too and for about 2 years I've been suddenly hit with rash after rash -- some all over my back making me think I looked like a leper. Then my forearms would flare up as if I'd scalded them. My brain went to no-end of dramatic stories I was telling myself that others were saying about me. Then one day I just got over it. I'm a swimmer! I need to swim! I realised that no one else cared, and if they did it was out of kindness. So I just want to wish you strength to swim anyway.

Panda x

[kate47]

Thank you Panda x

[Chanpreet_Walia LUPUS UK]

Hi Kate47,

You have received some lovely advice here, especially from panda2 , don't feel discouraged to swim, if it is safe to do so, you should!

Although you have had a biopsy, have you received any advice or treatment from a dermatologist? We published a booklet on lupus and the skin which you may find helpful - lupusuk.org.uk/wp-content/u...

Please keep us updated. Wishing you all the best & happy swimming!

[kate47]

I haven't Chanpreet but i will ask my doc for a referral. I will have a look at your booklet too. Thanks xx