Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,554 posts

All posts for November 2018

Repeat Medication not done by GP Practice/Chemist😞 What else must I do? Is there anything more practical can be done? 😭😭😭

Hi guys For those following you already know the recent challenges faced. On Wednesday 21st November 2018, I put in request for repeat pain relief...

Hi guys For those following you already know the recent challenges faced. On W...

denden

•6 years ago

13 Replies

Visit to Incontinence Clinic

This went well. I have tried two medications to control the urge incontinence but they increase my dry mouth to the extent of not being able to speak for long....

This went well. I have tried two medications to control the urge incontinence bu...

Lupiknits

•6 years ago

19 Replies

Giant Pile of Papers in Preparation for PIP Tribunal

Yes, it arrived. I have a lovely Welfare Rights Officer who, on the phone, told me a few things he thinks I couldn’t say because it didn’t pertain legally. I...

Yes, it arrived. I have a lovely Welfare Rights Officer who, on the phone, told ...

Lupiknits

•6 years ago

4 Replies

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Stopping meds

Hi. I’ve had a flu/ cold for weeks, I’m on Mercaptopurine which is a form or azathioprine, in the past I have had to stop it due to various infections and then...

Hi. I’ve had a flu/ cold for weeks, I’m on Mercaptopurine which is a form or aza...

joannebond360

•6 years ago

8 Replies

Cancer

Hi everyone I know haven’t posted for a while but I just need to talk to someone. My lovely husband of 33 years was diagnosed with lung cancer yesterday. I...

Hi everyone I know haven’t posted for a while but I just need to talk to someone...

Josieswolf

•6 years ago

38 Replies

Newbie!

Hi, so I’ve just joined and I guess I’m just looking for a bit of advice/tips/support for living with lupus really. I was diagnosed in December 2017 after 4...

Hi, so I’ve just joined and I guess I’m just looking for a bit of advice/tips/su...

Hidden

•6 years ago

10 Replies

Sore Eyes & Red Face

I keep getting sore eyes is this a typical symptom of Lupus? My eyes are often puffy and tired looking. I also seem to have a red face and patches on my skin...

I keep getting sore eyes is this a typical symptom of Lupus? My eyes are often p...

Hursty77

•6 years ago

7 Replies

Prolonged cough

Hi, I have Lupus Nephritis. Has anyone had a cough that has lasted for 8 weeks or more? I have had 3 courses of antibiotics and still have this annoying cough....

Hi, I have Lupus Nephritis. Has anyone had a cough that has lasted for 8 weeks o...

LusciousLiesa

•6 years ago

4 Replies

Seeking someone affected by discoid lupus to offer support

Hi everyone, We have been contacted by a lady with discoid lupus who would like to speak to another woman with the condition for support. If you have a...

Hi everyone, We have been contacted by a lady with discoid lupus who would like ...

Paul_Howard

Partner•6 years ago

2 Replies

Immune system

Hi everyone, I wonder if anyone can enlighten me. I was diagnosed 5 yrs ago with cutaneous lupus and sjogren's syndrome, I had blood tests and skin biopsy, I...

Hi everyone, I wonder if anyone can enlighten me. I was diagnosed 5 yrs ago with...

Biddy47

•6 years ago

21 Replies

Med side effects

Hi all. Newly diagnosed with SLE and just started prednisolone & plaquenil. Is it normal to feel like I’m jumping out of my skin? Will this improve? (PLEASE...

Hi all. Newly diagnosed with SLE and just started prednisolone & plaquenil. Is i...

AnotherAnne

•6 years ago

4 Replies

Aloe vera

I have recently been diagnosed with SLE and take hydroxychloroquine, someone recommended I should try Aloe Vera Gel to drink.... interested to hear if anyone...

I have recently been diagnosed with SLE and take hydroxychloroquine, someone rec...

Jmcb123

•6 years ago

5 Replies

Azathioprine and pregnancy

Hi all, I’m taking azathioprine 50mg twice a day and hydroxychloroquine 200mg twice a day for my Sle and Ra. I’ve mentioned to my rheumatologist in my last...

Hi all, I’m taking azathioprine 50mg twice a day and hydroxychloroquine 200mg tw...

Sezvic

•6 years ago

5 Replies

dsDNA

Can anyone tell me how high the dsDNA has to be for Lupus diagnosis as I had a low positive?

Can anyone tell me how high the dsDNA has to be for Lupus diagnosis as I had a l...

Boudica1

•6 years ago

9 Replies

Weakened legs!!

Hi Everyone Been A long time since being on here. I am in full time work now though so don't have much time. Anyway I have been coping some what ok recently,...

Hi Everyone Been A long time since being on here. I am in full time work now tho...

Hidden

•6 years ago

1 Reply

The Good, the Bad and the Ugly; and it’s only lunchtime!

The good news is that the cataract operation on my left eye has been an “outstanding success” according to the Chaplinesque surgeon as he skipped and rubbed...

The good news is that the cataract operation on my left eye has been an “outstan...

Lupiknits

•6 years ago

5 Replies

Diagnosing blood tests

Hi, has anyone on here been diagnosed with Lupus or another autoimmune disease without having a positive ANA double strand blood test result? My GP hasn’t...

Hi, has anyone on here been diagnosed with Lupus or another autoimmune disease w...

Frenchfancy

•6 years ago

12 Replies

Dose anyone hurt after you have done something ?

Dose anyone hurt after you have done something ? I went on treadmill yesterday for 20min in the morning and 10min last night right hip as hurt all night feels...

Dose anyone hurt after you have done something ? I went on treadmill yesterday f...

Ingerfoot

•6 years ago

2 Replies

Lupus?

Ok so I'm new here, I'm 39 and have been suffering with an unknown illness for about 15 years now. It started when I was 22 with what I thought to be constant...

Ok so I'm new here, I'm 39 and have been suffering with an unknown illness for a...

rosieredchops

•6 years ago

4 Replies

Salty goo and electrolyte imbalance

I guess many have seen twitchytoes's posts about salty goo. After personally experiencing something like that I decided to try to find out what might be going...

I guess many have seen twitchytoes's posts about salty goo. After personally exp...

overnighthearingloss

•6 years ago

29 Replies

Occupational health meeting

I had my OH meeting at work today with my boss. It went much better than I could have imagined. I will be moving classes will take a few weeks as it doesn’t...

I had my OH meeting at work today with my boss. It went much better than I coul...

LouLamb

•6 years ago

18 Replies

Getting a consultant referral for a CT-PET scan for relapsing polychondritis?

About 2 months ago, I started noticing chunks of my face rapidly atrophying - nose cartilage and around eyes especially, but also my jaw bone decreased by...

About 2 months ago, I started noticing chunks of my face rapidly atrophying - no...

Sarah030609

•6 years ago

7 Replies

Breathing pain with humidity - please support me.

💜LUPUS WARRIOR NEED URGENT HELP💜 I need absolutely some help an suggestions from you all lupus warriors or lupus specialists from all around the world to...

💜LUPUS WARRIOR NEED URGENT HELP💜 I need absolutely some help an suggestions f...

AuroraMaryColombo

•6 years ago

2 Replies

Has anyone had a flare following the FluAD vaccine?

Hi everyone, I've just rejoined the forum after many years' absence, primarily to find out people's experiences after receiving the adjuvanted trivalent flu...

Hi everyone, I've just rejoined the forum after many years' absence, primarily t...

Hidden

•6 years ago

10 Replies

WOWZERS - docs missed a big one! Blood counts

Hi all, So after my ER visit I realized that had actually been considerate enough to print my labs. The doctor who saw me said my labs looked "good" and...

Hi all, So after my ER visit I realized that had actually been considerate enoug...

katidid

•6 years ago

35 Replies

Chronic laryngitis

Hi all, Does anyone have chronic laryngitis? I get it fairly regularly, and recently discovered it can be an inflammation issue. It starts with pain in the...

Hi all, Does anyone have chronic laryngitis? I get it fairly regularly, and re...

Nurseladybird

•6 years ago

6 Replies

Hydroxychloroquine and rash?

I was recently started on hydroxychloroquine for possible lupus. My ANA came back at 1:160. So weak. My MD thinks I may have lupus. 5 days in I broke out with...

I was recently started on hydroxychloroquine for possible lupus. My ANA came bac...

Pharmdpositive

•6 years ago

7 Replies

Research Survey – Share about your disease, journey to diagnosis and the level of support you feel you receive/received from doctors

***This survey is now closed. Thank you to everyone who took part. You can read more about the future of this project at...

***This survey is now closed. Thank you to everyone who took part. You can read ...

Paul_Howard

Partner•6 years ago

59 Replies

Leg pain

Hey all am not diagnosed with lupus being investigated for other autoimmune disease. Have a question, I find after walking flight of stairs or two(depending on...

Hey all am not diagnosed with lupus being investigated for other autoimmune dise...

Benne09

•6 years ago

8 Replies

Five months post Hydroxychloroquine allergic reaction....

It's now 5 months since my first dosage of Hydroxychloroquine and it's finally leaving my body I'm still being treated with high dosages of antihistamines...

It's now 5 months since my first dosage of Hydroxychloroquine and it's finally ...

Izzy123gym

•6 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2018

Repeat Medication not done by GP Practice/Chemist😞 What else must I do? Is there anything more practical can be done? 😭😭😭

Visit to Incontinence Clinic

Giant Pile of Papers in Preparation for PIP Tribunal

Stopping meds

Cancer

Newbie!

Sore Eyes & Red Face

Prolonged cough

Seeking someone affected by discoid lupus to offer support

Immune system

Med side effects

Aloe vera

Azathioprine and pregnancy

dsDNA

Weakened legs!!

The Good, the Bad and the Ugly; and it’s only lunchtime!

Diagnosing blood tests

Dose anyone hurt after you have done something ?

Lupus?

Salty goo and electrolyte imbalance

Occupational health meeting

Getting a consultant referral for a CT-PET scan for relapsing polychondritis?

Breathing pain with humidity - please support me.

Has anyone had a flare following the FluAD vaccine?

WOWZERS - docs missed a big one! Blood counts

Chronic laryngitis

Hydroxychloroquine and rash?

Research Survey – Share about your disease, journey to diagnosis and the level of support you feel you receive/received from doctors

Leg pain

Five months post Hydroxychloroquine allergic reaction....

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