Hi, so I’ve just joined and I guess I’m just looking for a bit of advice/tips/support for living with lupus really. I was diagnosed in December 2017 after 4 years of fighting with people to get the diagnosis and I feel incredibly alone as no one can seem to understand how I feel.
I’m not very good at these things but I guess I’m just looking to see how other people deal with certain symptoms etc as I’m feeling incredibly overwhelmed by old symptoms but now many new ones.
😊
Hi and welcome everyone is lovely here and great place to share your experiences xx
Welcome AliceScene: glad you’ve found us. This forum really is The Greatest. Have you discovered the Lupus UK website too? It’s full of great info & advice including publications you can download...here is the link to these publications:
Take care, 🍀🍀🍀🍀 Coco
If you describe the symptoms that are worrying you I'm sure someone here will be able to help.
As everybody else has said , this is a great forum & I strongly recommend that you join Lupus UK. The staff at Head Office are all amazing & included in your subscription is a fantastic quarterly magazine that is full of news & useful tips. Most of all - stay strong & don't let Lupus rule your life !!! 😀
Welcome! You’ll always find lots of information on the site, the admin are invaluable, and the rest of us help each other the best we can - even if it’s a good giggle x
Welcome AliceSene, do you live in the UK somewhere? I am from Australia & the site is incredibly supportive & helpful,
Best of luck xx
Melbourne-Girl
🍀🍀🍀🍀🍀🍀
Hi and welcome AliceSene
U are definitely not alone..there are loads of people here who understand how u feel, with a wealth of experience, from people living with lupus and other autoimmune disorders. Ask any questions that are on your mind and u will be able to get advice and understanding.. unfortunately many health professionals are uneducated about lupus so this is a great forum to enable us to learn about our illness from people who live with lupus day in day out x
A warm Welcome AliceSene, You will find this site so helpful and supportive. If you explain your symptoms, you will find there are people on here that can help you and reinforce that you are not alone in this battle. Go to the website that Barnclown recommended. It is a wealth of information. Take care.
Hi,
Welcome to the LUPUS UK HealthUnlocked Community! We offer a free information pack which you may like to download or request at lupusuk.org.uk/request-info...
We offer a wide range of publications with regards to lupus and certain topics i.e. skin and hair which you can access here lupusuk.org.uk/publications/
Would you like someone to chat with? I can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at chanpreet@lupusuk.org.uk
Please keep us updated, wishing you all the best.
Your first appointment at the hospital 
Steroid cards - Do all people have them who need them?
is this a lupus rash? 
