Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2018

Appointment with a Rheumatologist.

If anyone has been reading my posts you will know I have been having a tough time. The last post was about peripheral neuropathy. My Dr referred me to the...

If anyone has been reading my posts you will know I have been having a tough tim...

Wrexlu

•6 years ago

3 Replies

Please advise

Hi guys I just received my blood test ANA and ds- DNA. Last month ANA was 222 and now it is 184; ds- DNA was 12 and now it is 39. I will not be abel to reach...

Hi guys I just received my blood test ANA and ds- DNA. Last month ANA was 222 an...

Saranda

•6 years ago

6 Replies

In Total Despair

I don't think I could get any lower. I tried to write yesterday to seek help and do something positive, but couldn't get my thoughts into words. I've jumped...

I don't think I could get any lower. I tried to write yesterday to seek help and...

Ladyuponthelake

•6 years ago

37 Replies

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Steroid injection

Does anyone on here have any experience of having steroid injections? I was diagnosed earlier in the year with a connective tissue disease (told it was showing...

Does anyone on here have any experience of having steroid injections? I was diag...

EmmaMac

•6 years ago

4 Replies

Foods/supplement ideas please.

Hi, I'm 33, and new to this community after recently being diagnosed with 'undifferentiated connective tissue disease' with a lot of features of lupus. I have...

Hi, I'm 33, and new to this community after recently being diagnosed with 'undif...

Loopylou1234

•6 years ago

8 Replies

Little red dots on feet

Anyone have any idea about this red rash on both my feet, the only part of me exposed to sun recently due to sandals. I don't have lupus according to blood...

Anyone have any idea about this red rash on both my feet, the only part of me ex...

Krawlins

•6 years ago

25 Replies

Hi everyone

I keep reading your posts, but am unable to offer the tiniest bit of advice. I just wanted to tell you that I am thinking of you all. Lots of hugs from very...

I keep reading your posts, but am unable to offer the tiniest bit of advice. I j...

Lili18

•6 years ago

3 Replies

Prolapsed uterus - bowel movement?

Hi eveyone, well its been a while. Thoracic surgeon pleased with my recent chest x-ray and lung function test - hurray! but, that's about the only good thing....

Hi eveyone, well its been a while. Thoracic surgeon pleased with my recent chest...

Bronn

•6 years ago

7 Replies

how do I change my life and rid myself of stress

been feeling really down for a few months feel as if I am just sitting here waiting to die. everything seems to cause stress, wondering if I will get...

been feeling really down for a few months feel as if I am just sitting here wait...

suzannah16

•6 years ago

13 Replies

Is this a beginning malar rash?

Dear people. I've had some weird symptoms the last year but the thought of having an autoimmune disease like Systemic Lupus never crossed my mind. I have...

Dear people. I've had some weird symptoms the last year but the thought of havin...

weirdsympt0ms

•6 years ago

4 Replies

Elbow swelling

Hello all, Below is a photo of my right elbow. It appears very swollen and it feels tender. My steroids (5mg of pred daily) usually seem to keep all swelling...

Hello all, Below is a photo of my right elbow. It appears very swollen and it f...

mollyaimee

•6 years ago

9 Replies

Flare

Had lupus 30 years st the moment in s really bad flare

Topcat7

•6 years ago

2 Replies

What can I do more of to not feel loanley and in pain

I don't go out much. I don't mix good with people. I can hardly walk . I vidio chat to famlie some times. The tiredness and pain is unreal . I can't take pàin...

I don't go out much. I don't mix good with people. I can hardly walk . I vidio c...

nita57

•6 years ago

7 Replies

Flu Jab

Hi all It’s coming to that time of year when you decide to have a flu jab. Our local medical centre is only offering last years strain. There is a new strain...

Hi all It’s coming to that time of year when you decide to have a flu jab. Our...

Hollydebs

•6 years ago

13 Replies

Any ideas ?

Great summer marred by additional symptoms. I appear to have eczema on both hands now, with fingers splitting at the slightest contact. Then last week these...

Great summer marred by additional symptoms. I appear to have eczema on both han...

Cas70

•6 years ago

1 Reply

Indescribable pain

I have a pain in my legs that I don’t know how to describe, I’ve never had this type of pain before and I’m struggling to do anything. I’ve got two children on...

I have a pain in my legs that I don’t know how to describe, I’ve never had this ...

Tinkerjack1912

•6 years ago

6 Replies

Heart rate 200

Hello all, I have a question. My daughter who is 22 has connective tissue disease. I am a lupus sufferer. So it is in the family. The question is related to my...

Hello all, I have a question. My daughter who is 22 has connective tissue diseas...

LalSD

•6 years ago

30 Replies

Spooky

Been focusing on my daughters probs pos a s or fibromyalgia so not been posting but it’s ve had a really bad couple of weeks with my hands ,headaches...

Been focusing on my daughters probs pos a s or fibromyalgia so not been posting ...

Ianrussell69

•6 years ago

5 Replies

Blotchy palms

Better photo if anyone has had anything similar please comment

Missnatalie2018

•6 years ago

19 Replies

Blotchy palm please help

I have blotchy hands with a few dark pink marks on palms and one on finger I have no idea what it is and I'm actually scared the doctor doesn't know either...

I have blotchy hands with a few dark pink marks on palms and one on finger I hav...

Missnatalie2018

•6 years ago

3 Replies

PLEURISY/PLEURAL EFFUSION

I have had pleural effusion for 4 weeks now but the pain is still intense and it's not going away. I have SLE and other illnesses and have had this before but...

I have had pleural effusion for 4 weeks now but the pain is still intense and it...

Pipido36

•6 years ago

5 Replies

Appointment 🤬

Hi everybody I had a rheumatology app last week. .my Docters phone up as it has been a year since last seen a consultant. I went thinking I was seeing main...

Hi everybody I had a rheumatology app last week. .my Docters phone up as it has ...

barbdockeray

•6 years ago

4 Replies

Lupus, abdominal pain and vomiting

I’ve been in pain for 6 days, dizzy, nauseous and now vomiting for 3 days - can’t keep anything down. Have tried to eat a little so I can take my pills but...

I’ve been in pain for 6 days, dizzy, nauseous and now vomiting for 3 days - can’...

DeborahMonmouth

•6 years ago

6 Replies

Headaches aps and sle

I have both sle and aps and am on treatment to prevent headaches and also clopidogrel. The problem I’m having is that when I get a headache/migraine ( which...

I have both sle and aps and am on treatment to prevent headaches and also clopid...

Sara_A

•6 years ago

7 Replies

Advice

I was told last week by my rumatologist that the sle is progressing with possible kidney involment now. My problem is my mother in law is 94 and asking to...

I was told last week by my rumatologist that the sle is progressing with possibl...

luupysue

•6 years ago

10 Replies

Help

Hi all, I have a couple of questions for anyone who is able to answer. Firstly, I have been told I do not have Lupus after blood tests even though I have...

Hi all, I have a couple of questions for anyone who is able to answer. Firstly,...

Benne09

•6 years ago

9 Replies

Small wound infection

I had a small splinter in the bottom of my thumb yesterday which I removed easily as the end was poking out. Now I have a swollen thumb/half of my hand. The...

I had a small splinter in the bottom of my thumb yesterday which I removed easil...

HedgeEnd

•6 years ago

8 Replies

Twitching muscles

Hi all you lovely people, Just wondered if anyone has episodes of twitching/spasming muscles? I seem to get them most in my hands, feet, thighs, upper lip and...

Hi all you lovely people, Just wondered if anyone has episodes of twitching/spa...

Nurseladybird

•6 years ago

21 Replies

Sore mouth

Do any of you luppies have burnt roof of mouth or blisters in mouth.My mouth is on fire

Do any of you luppies have burnt roof of mouth or blisters in mouth.My mouth is ...

biddy75

•6 years ago

4 Replies

The misery of Pleurisy/Pleuritic Chest Pain and Prednisolone

I am currently unwell, I picked up a virus 6 weeks ago, which morphed into chest pain on a pain level I have not experienced before. Fortuitous that I was...

I am currently unwell, I picked up a virus 6 weeks ago, which morphed into chest...

LupusKaren

•6 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2018

Appointment with a Rheumatologist.

Please advise

In Total Despair

Steroid injection

Foods/supplement ideas please.

Little red dots on feet

Hi everyone

Prolapsed uterus - bowel movement?

how do I change my life and rid myself of stress

Is this a beginning malar rash?

Elbow swelling

Flare

What can I do more of to not feel loanley and in pain

Flu Jab

Any ideas ?

Indescribable pain

Heart rate 200

Spooky

Blotchy palms

Blotchy palm please help

PLEURISY/PLEURAL EFFUSION

Appointment 🤬

Lupus, abdominal pain and vomiting

Headaches aps and sle

Advice

Help

Small wound infection

Twitching muscles

Sore mouth

The misery of Pleurisy/Pleuritic Chest Pain and Prednisolone

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