Sore mouth

[biddy75]

Do any of you luppies have burnt roof of mouth or blisters in mouth.My mouth is on fire

[DJK99]

Hey biddy, yes - I had this for years and years but just ignored it... and since diagnosis this year and on Methotrexate, it has really calmed down. What are you on? D

[Creamcrackered]

Hi biddy75 yes the roof of my mouth often feels like it’s on fire too, I get occasional ulcers, mine come with the lovely methotrexate injections, is that what you take ?

I know it’s miserable to have this most of the time, ice cream and cold drinks help a little.

Much love ☺️Xx

[Barnclown]

Yes...this was childhood onset and my medics say relates to how my primaries’ affect my GI tract mouth to a*s. These tend to flare when any of my early onset primaries & secondaries are flaring, but i never have a day without some degree of oral burning & lesions. My primaries are infant onset lupus + hypermobile ehlers danlos + hypogammaglobulinaemia (a inability to make antibodies). The early onset secondaries making this worse range from sjogrens to small vessel vasculitis. If anything, my daily combined therapy meds help reduce the severity of these symptoms, especially immunology’s daily prophylactic antibiotic which damps down my slow transit dysmotility SIBO (small intestine bacteria overgrowth)

🍀🍀🍀🍀 Coco

[Chanpreet_Walia LUPUS UK]

Hi biddy75,

Have you spoken to your GP or rheumatologist about this?

Oral (mouth) and nasal (nose) ulcers are one of the most common features of lupus occurring in around 45% of people who have SLE. We published a blog article on coping with oral and nasal ulcers which you can read here: lupusuk.org.uk/coping-with-...