Spooky : Been focusing on my daughters probs pos a... - LUPUS UK

LUPUS UK

31,893 members28,222 posts

Spooky

Ianrussell69 profile image
5 Replies

Been focusing on my daughters probs pos a s or fibromyalgia so not been posting but it’s ve had a really bad couple of weeks with my hands ,headaches breathlessness ect and this week end my hands were very bad and I got a phone call this morning from the rumi nurse asking me if I want to take a cancellation so I have appointment Wednesday at 315 freaked me out bit but very happy 😊

Written by
Ianrussell69 profile image
Ianrussell69
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Melba1 profile image
Melba1

Sorry you’re having a flare, sometimes worrying about our children can bring them on? I hope you and your daughter find the right treatment and feel much better soon. Great you get to see rheumy soon x

Ianrussell69 profile image
Ianrussell69 in reply to Melba1

The appointment went surprisingly well😃

Melba1 profile image
Melba1 in reply to Ianrussell69

That’s good 🙂 any treatment?

Ianrussell69 profile image
Ianrussell69 in reply to Melba1

The treatment stays 5he same hydroxy,methatrexate injections folic acid,tramadol and salidaphil for the rainods gosh that seams a lot oh and nortriptalin only when I’m having a bad time with muscle and joints but he did say the c t d markers are lower so he Meds seem to be working 🤞🤞

Melba1 profile image
Melba1 in reply to Ianrussell69

That’s good 🙂 any treatment?

You may also like...

Swollen hands and feet - mtx side effect?

noticed the last week or so that whenever I first wake up my hands and feet are very puffy, swollen...

Prednisolone diary 3 - steady on 4.5mg

have now been on 4.5 for a month. Progress over these last two weeks has been patchy. Week 3 on 4.5...

Hi I’m a Man aged 55 advice please

suspecting it’s Lupus. I think I’ve probably had it for years but it’s never really flared up badly...

Prednisone makes me feel amazing!!!!

go back next week to see her for my blood work results. I know that this drug has very bad long...

Rhumatology appointment

lost faith in them. My hands and knees have been really bad over the past few weeks still having a...