Spooky : Been focusing on my daughters probs pos a... - LUPUS UK

LUPUS UK

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Spooky

Ianrussell69 profile image
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Been focusing on my daughters probs pos a s or fibromyalgia so not been posting but it’s ve had a really bad couple of weeks with my hands ,headaches breathlessness ect and this week end my hands were very bad and I got a phone call this morning from the rumi nurse asking me if I want to take a cancellation so I have appointment Wednesday at 315 freaked me out bit but very happy 😊

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Ianrussell69
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Melba1 profile image
Melba1

Sorry you’re having a flare, sometimes worrying about our children can bring them on? I hope you and your daughter find the right treatment and feel much better soon. Great you get to see rheumy soon x

Ianrussell69 profile image
Ianrussell69 in reply to Melba1

The appointment went surprisingly well😃

Melba1 profile image
Melba1 in reply to Ianrussell69

That’s good 🙂 any treatment?

Ianrussell69 profile image
Ianrussell69 in reply to Melba1

The treatment stays 5he same hydroxy,methatrexate injections folic acid,tramadol and salidaphil for the rainods gosh that seams a lot oh and nortriptalin only when I’m having a bad time with muscle and joints but he did say the c t d markers are lower so he Meds seem to be working 🤞🤞

Melba1 profile image
Melba1 in reply to Ianrussell69

That’s good 🙂 any treatment?

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