Undiagnosed...as of today

[Winniesue]

My Mother had Lupus and was diagnosed with it in her 50's. I am pretty sure I have it as well, and I am in my 50's now. I've been struggling for years and MD's put it off as "depression" and "anxiety" yeah? tell that to my 2 hands that look like balloons after itching for 2 days straight.

[Bebe76]

I got "depression" from some of my doctors before I was finally diagnosed. I think many of us with lupus get that before we are diagnosed, unfortunately. Have you even been referred to a rheumatologist or had an ANA test or other tests for antibodies?

[Winniesue in reply to Bebe76]

Yes, I had a positive RA test and was referred to a Rhumatologist, who decided I needed to talk to phych. lol. Now I have another, with more symptoms..sounds like maybe trip number 2 would be a good idea.

[Chanpreet_Walia LUPUS UK]

Hi Winniesue,

Welcome to the LUPUS UK HealthUnlocked community!

Have you thought about getting a referral for a second opinion?

Skin involvement is a common symptom of lupus affecting around 60% - 70% of lupus patients. To find out what other symptoms are associated with lupus, you can download or request our information pack: lupusuk.org.uk/request-info...

You also may want to read our blog article on coping with itchy rashes here: lupusuk.org.uk/coping-with-...

It currently takes an average of seven years to diagnose lupus. To find out about the specific tests and criteria required to make a diagnosis, click here: lupusuk.org.uk/getting-diag...

Please keep us updated, wishing you all the best.