Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for February 2018

Shrunken lung syndrome

I have pulmonary fibrosis and now have shrunken lungs. All due to SLE Being started on myclophenodate. Anybody else suffering the same? Any advice?

I have pulmonary fibrosis and now have shrunken lungs. All due to SLE Being sta...

janann

•7 years ago

3 Replies

Sick :(

I couldn’t go to my Rheumy when I already had an appointment, they told me my pcp didn’t sent my referral so now i have to wait until next week. I’m not...

I couldn’t go to my Rheumy when I already had an appointment, they told me my pc...

Jcabrera521

•7 years ago

1 Reply

Diagnosis 🤩 Gastroenterologist App Update

Sorry for the late reply everyone. I haven’t been very well.. I’ve been eager to let you all know that I finally have a DIAGNOSIS! (Tummy) 👉🏻chronic...

Sorry for the late reply everyone. I haven’t been very well.. I’ve been eager ...

LauraMk30

•7 years ago

33 Replies

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“Jokes” at work

I’m a PhD student and work part time. When I applied to my job I put on the form that I had a long term health condition. I’ve been as clear with my boss as...

I’m a PhD student and work part time. When I applied to my job I put on the form...

Raeofsunshine

•7 years ago

21 Replies

Lupus and fibromyalgia = HELL

So I was diagnosed with lupus 11 years ago started to get it under control a few years back and bam diagnosed with fibromyalgia too, both have very similar...

So I was diagnosed with lupus 11 years ago started to get it under control a few...

X-Jojom-X

•7 years ago

3 Replies

Help me please

Hello, I'm Lou, I have been diagnosed with M.E in 2013, but I have such different pain now. My legs burn so much the pain gets unbearable, mostly when I walk...

Hello, I'm Lou, I have been diagnosed with M.E in 2013, but I have such differen...

Fredabooboo

•7 years ago

9 Replies

TMD

I’ve have wrote previously I have TMD . It’s really swelled up and flared since yesterday . So went to doctors tonight and she has given me a referral to the...

I’ve have wrote previously I have TMD . It’s really swelled up and flared since ...

LouLamb

•7 years ago

3 Replies

I'm taking on 10 half marathons in 2018 for LUPUS UK

Hi everyone, Today is the 10th anniversary of my friend Heather's "angel day". She sadly lost her battle with lupus when she was just 18. To celebrate her...

Hi everyone, Today is the 10th anniversary of my friend Heather's "angel day". S...

Paul_Howard

Partner•7 years ago

23 Replies

morning anxiety

I take SETRALINE and have done for a while now -just lately I feel awful in morning and can never seem to get things done until later

I take SETRALINE and have done for a while now -just lately I feel awful in morn...

52peacocks

•7 years ago

6 Replies

Feeling dull and sharp pain

For a couple days now I take a deep breath or move around and I feel sharpness in the left side of my chest, not exactly where my heart is but close enough....

For a couple days now I take a deep breath or move around and I feel sharpness i...

Jcabrera521

•7 years ago

7 Replies

When the Dr says you have another condition

Hello all So i had AVN and 2 years ago i had a coredecompression surgery on both knees and ankle. I have been using my stick even before the surgery . I was...

Hello all So i had AVN and 2 years ago i had a coredecompression surgery on bot...

ijeasike

•7 years ago

2 Replies

Difficulty swallowing

Hi, Does anyone else struggle with swallowing?? Like u have to really swallow hard to get the food down ur throat? I have to drink to help get the food down....

Hi, Does anyone else struggle with swallowing?? Like u have to really swallow h...

Sara_A

•7 years ago

31 Replies

Dreaded cold

So since last week Wednesday I’ve felt like utter crap. I have caught a cold , got a nasty flemy cough. My jaw problem has flared up with it. So painful to...

So since last week Wednesday I’ve felt like utter crap. I have caught a cold , ...

LouLamb

•7 years ago

4 Replies

Does anyone on here suffer from laryngeal dystonia?

Laryngeal dystopia

Runner127

•7 years ago

Be the first to reply

Jaccouds arthropathy

Hi I am trying to find a site about Jaccouds arthropathy. I have been diagnosed with this condition which, apparently can happen in SLE patients. It is mainly...

Hi I am trying to find a site about Jaccouds arthropathy. I have been diagnosed ...

caz59

•7 years ago

1 Reply

Bath chair

Got my bath chair hoist fitted on Thursday. Will be trying it tomorrow . Tried the hoisting out of Thursday when got it . It seemed quite good will see what’s...

Got my bath chair hoist fitted on Thursday. Will be trying it tomorrow . Tried t...

LouLamb

•7 years ago

6 Replies

MY MRS ALWAYS HAVE VERY SEVEIR HEADACHE

most of the time my mrs feels very seveir headache ,please suggest the solution... Thank you

most of the time my mrs feels very seveir headache ,please suggest the solution....

sp999

•7 years ago

3 Replies

Tested positive ANA titre 320, speckled

I have Hashimoto’s which was diagnosed about 4 years ago. I’ve been running low grade fever, fatigue, achy muscles for awhile so went to GP. She did bloodwork...

I have Hashimoto’s which was diagnosed about 4 years ago. I’ve been running low ...

Sue320

•7 years ago

4 Replies

Don’t know what to tell my rheumatologist at my 1st appointment.

Recap, I went to my GP for a physical since I had horrible pregnancies which caused my vitamins and minerals to be out of sync as if I were a person with...

Recap, I went to my GP for a physical since I had horrible pregnancies which cau...

Jeniedo

•7 years ago

3 Replies

Hot and cold

Hi all....I have a question about regulating body temperature. Lately I get so hot at night that I am up turning down the temperature on the furnace.....and...

Hi all....I have a question about regulating body temperature. Lately I get so h...

Barbarajeand

•7 years ago

6 Replies

Need peoples answers to their signs and symptoms and how long it took them to be diagnosed with lupus

Im worried I may have lupus or some form of an immune issue going on...just searching for help,feedback and advice

Im worried I may have lupus or some form of an immune issue going on...just sear...

Sm86

•7 years ago

11 Replies

Need advice feedback something

Hi, I am very new to this and I am hoping I could get some good feedback and good advice on what to do. I have been sick on and off since I was about 14 years...

Hi, I am very new to this and I am hoping I could get some good feedback and goo...

Sm86

•7 years ago

4 Replies

Shögren’s - think I have it

Following up the Lupus post regarding the above, I ticked every box and an very surprised that my rheumatologist and doctor has not picked up on this. I have...

Following up the Lupus post regarding the above, I ticked every box and an very ...

Iona467

•7 years ago

6 Replies

No Diagnosis Nurologist thints Fibromyalgia

Hi does anyone else suffer with pain, and weakness from the neck down the arms in to elbows and hands, fingers nails curve and Ingrow painful. Tingling numb...

Hi does anyone else suffer with pain, and weakness from the neck down the arms i...

Yellow-Petal

•7 years ago

10 Replies

Food intolerances?? 🤢

Does anyone or has anyone had any sort of food intolerance since being diagnosed with lupus??

Does anyone or has anyone had any sort of food intolerance since being diagnosed...

Macsimum_de

•7 years ago

19 Replies

New Powerchair on the way

Had to post this up as it’s been a rough winter and this is one less worry. As you might recall I gave up on DLA/PIP last year and had to give my powerchair...

Had to post this up as it’s been a rough winter and this is one less worry. As y...

Silvergilt

•7 years ago

7 Replies

Lupus???

I have a new Dr at the free clinic here, and explaining what I have, she ordered bloods test and they came back negative and told me all I have is a vitamin...

I have a new Dr at the free clinic here, and explaining what I have, she ordered...

Hidden

•7 years ago

5 Replies

What to mention/show at a rheumatologist appointment

Hello, I have a rheumatologist appointment on Sunday as my Gp suspects that i have lupus. My symptoms include chest pain urine infections, butterfly rash,...

Hello, I have a rheumatologist appointment on Sunday as my Gp suspects that i ha...

stephaniejpm

•7 years ago

3 Replies

Rheumatologist does he know what he's talking about

4 months after I got my ANApositive result my rheumatologist turns around and tells me even though you didn't test positive for Sjogren's disease I am 100%...

4 months after I got my ANApositive result my rheumatologist turns around and te...

Vickmt

•7 years ago

5 Replies

First Rhumatologist appointment.

Hi everyone :) I joined this lupus uk a while back but have not had the time to post until now! I am not currently diagnosed with Lupus, as i'm still being...

Hi everyone :) I joined this lupus uk a while back but have not had the time to ...

Tiffy1992

•7 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2018

Shrunken lung syndrome

Sick :(

Diagnosis 🤩 Gastroenterologist App Update

“Jokes” at work

Lupus and fibromyalgia = HELL

Help me please

TMD

I'm taking on 10 half marathons in 2018 for LUPUS UK

morning anxiety

Feeling dull and sharp pain

When the Dr says you have another condition

Difficulty swallowing

Dreaded cold

Does anyone on here suffer from laryngeal dystonia?

Jaccouds arthropathy

Bath chair

MY MRS ALWAYS HAVE VERY SEVEIR HEADACHE

Tested positive ANA titre 320, speckled

Don’t know what to tell my rheumatologist at my 1st appointment.

Hot and cold

Need peoples answers to their signs and symptoms and how long it took them to be diagnosed with lupus

Need advice feedback something

Shögren’s - think I have it

No Diagnosis Nurologist thints Fibromyalgia

Food intolerances?? 🤢

New Powerchair on the way

Lupus???

What to mention/show at a rheumatologist appointment

Rheumatologist does he know what he's talking about

First Rhumatologist appointment.

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