Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for December 2017

Help at hand

Ive recently been diagnosed with lupus and so glad i found this site yesterday. Been back and forward to the GP for three years with a growing list of symptoms...

Ive recently been diagnosed with lupus and so glad i found this site yesterday. ...

CarolMcl

•7 years ago

10 Replies

November's Topic of the Month - Lupus and Work

Our blog article for November about lupus and work has now been published. https://www.lupusuk.org.uk/lupus-and-work/ Thank you so much to everybody who...

Our blog article for November about lupus and work has now been published. https...

Paul_Howard

Partner•7 years ago

4 Replies

First appointment to lupus clinic

Hi, I recently moved from Italy in UK, how can optain the first appointment to st. Thomas Ospital. How long time I must wait for a free visit. And how much...

Hi, I recently moved from Italy in UK, how can optain the first appointment to s...

elena87

•7 years ago

4 Replies

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Barefoot With Lupus

Good Monday Morning to everyone! Just a post to say Hello! The rashes/blisters are starting to look better on my feet especially my right foot! Finally the...

Good Monday Morning to everyone! Just a post to say Hello! The rashes/blisters a...

Tiras

•7 years ago

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Quick Question!

Hey guys, I’ve been on hydroxy for 4 months, no formal diagnosis as yet, noticed improvement after 2 months...sleeping through the night again, sweats and...

Hey guys, I’ve been on hydroxy for 4 months, no formal diagnosis as yet, noticed...

LLH76

•7 years ago

6 Replies

Update

Hi. I’ve been home from St Thomas just over a week now. Started Mycophenolate when I came home. No side effects yet! I little nausea that’s all. But of course...

Hi. I’ve been home from St Thomas just over a week now. Started Mycophenolate wh...

Wolf1

•7 years ago

6 Replies

The worst flare up

Ive been ill now for over a month, the pain gers worse every day and the doctor wont give me pain meds as he wants the Lupus specialist to see it in its...

Ive been ill now for over a month, the pain gers worse every day and the doctor ...

Jodziebear

•7 years ago

5 Replies

Kind words please . . .

I'm from Iowa. I was diagnosed with Fibromyalgia about 8-9 years ago. It's has been a struggle day in and day out for my family. Every year things get worse....

I'm from Iowa. I was diagnosed with Fibromyalgia about 8-9 years ago. It's has b...

Montross87

•7 years ago

4 Replies

Shattered just putting Xmas tree up

Well today I managed to put my Xmas tree together and decorate it. Looks lovely but got to put the rest of decorations up and more lights everywhere yet .Knew...

Well today I managed to put my Xmas tree together and decorate it. Looks lovely ...

englishrose67

•7 years ago

5 Replies

It's Still A Beautiful Life!

I am excited about my new pillow and greeting card line for my fellow Lupus Warriors! The wolf was hand drawn by me during a stressful flare. There is a story...

I am excited about my new pillow and greeting card line for my fellow Lupus Warr...

lupusforme

•7 years ago

9 Replies

Just started Azathioprine and struggling!

I started on a low dose 25mg a week and a half ago and upped to 50mg last Thursday for 3 weeks then a further increase until I hit 2mg per 2kg in weight with...

I started on a low dose 25mg a week and a half ago and upped to 50mg last Thursd...

MissFG

•7 years ago

8 Replies

Worried sick about my PIP mobility rate been taken

Hi all I just want to know how anybody has coped with the pressure of being in benefit. I want to be healthy again, get a job and become independent. But...

Hi all I just want to know how anybody has coped with the pressure of being in b...

ijeasike

•7 years ago

5 Replies

Hand & feet warmers.

I receive offers from a great website called Complete Care Shop. At the moment they have a good offer on hand & feet warmers. There called Hotteeze Hand...

I receive offers from a great website called Complete Care Shop. At the moment t...

smudge1980

•7 years ago

2 Replies

Help and understanding

Hi all, Hope I'm not gatecrashing as I've not had an official diagnosis. But I'm so so desperate to understand what's wrong with me- all my consultant has said...

Hi all, Hope I'm not gatecrashing as I've not had an official diagnosis. But I'm...

Ksblack

•7 years ago

20 Replies

I have lupus

One year ago, I was digonas with lupus. I was always tried and my bones was always hitting me.. So I went to my doctor, and I told my Dr my hands and my legs...

One year ago, I was digonas with lupus. I was always tried and my bones was alwa...

Gerri9

•7 years ago

1 Reply

Tummy pain

Does anyone else get pain on the bottom right side of the belly? Sharp pain.

Tulipano

•7 years ago

7 Replies

Feeling unwell

I am not feeling well. I am feeling weak, light headed and tremors. Don't know what to do.

I am not feeling well. I am feeling weak, light headed and tremors. Don't know...

Tulipano

•7 years ago

8 Replies

Lupus questions

Hi. I have 2 questions, if you don't mind. Firstly I have been referred to the Kellgren Centre in Manchester to see Dr Ben Parker in my struggle for a...

Hi. I have 2 questions, if you don't mind. Firstly I have been referred to the K...

Suecon

•7 years ago

6 Replies

All I want for Xmas is...bedsocks

Well, I would really like an end to world poverty, racism, homophobia, war and the destruction of the earth. And health and happiness for everyone I love. But...

Well, I would really like an end to world poverty, racism, homophobia, war and t...

whisperit

•7 years ago

27 Replies

Breast surgery.

I have had the X rays, the biopsies ,the CAT scan and is happening on Monday. I see the surgeon on Thursday when he will give me results and then I will have...

I have had the X rays, the biopsies ,the CAT scan and is happening on Monday. I ...

bones-bones

•7 years ago

13 Replies

Has anyone bend treated at UCLH?

Hi I have recently been seen by a prof at UCLH. Just wondering if any one else was being seen here and what they thought of their care?

Hi I have recently been seen by a prof at UCLH. Just wondering if any one else w...

cpops

•7 years ago

8 Replies

Finally saw my Rheumy

Finally saw my Rheumy, he thinks maybe I just have migratory arthritis. He prescribed celexcib to see if it will help with pain and IBS , so far it’s not...

Finally saw my Rheumy, he thinks maybe I just have migratory arthritis. He presc...

Jcabrera521

•7 years ago

2 Replies

Barefoot With Lupus

Yesterday afternoon (Friday) I felt a little better. We heat our house with fire wood. We have an insert that has a catalytic converter. Once the fire place...

Yesterday afternoon (Friday) I felt a little better. We heat our house with fire...

Tiras

•7 years ago

2 Replies

Is it Lupus or is it not

My recent visit to see my Rheumatologist...well it’s definitely not Rheumatoid arthritis I have and my anti ds-dna count was 21 and negative...does this rule...

My recent visit to see my Rheumatologist...well it’s definitely not Rheumatoid a...

Louclou

•7 years ago

7 Replies

Laura & I

I'm not 100% sure about this post, it is an intimate question. Last night Laura and I tried to get intimate, but, to find a way that was good for her was...

I'm not 100% sure about this post, it is an intimate question. Last night ...

Tiras

•7 years ago

16 Replies

⭐️ GP Practice

Since changing my practice earlier this year I've been really pleased how well they have put things right that my last practice had...

Since changing my practice earlier this year I've been really pleased how well t...

Lupiknits

•7 years ago

7 Replies

Very dry hands

Morning guys another frosty day can anyone recommend a really good senstive moisturising cream/ lotion for hands. I've tried several ones not working my hands...

Morning guys another frosty day can anyone recommend a really good senstive mois...

Hidden

•7 years ago

26 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2017

Help at hand

November's Topic of the Month - Lupus and Work

First appointment to lupus clinic

Barefoot With Lupus

Quick Question!

Update

The worst flare up

Kind words please . . .

Shattered just putting Xmas tree up

It's Still A Beautiful Life!

Just started Azathioprine and struggling!

Worried sick about my PIP mobility rate been taken

Hand & feet warmers.

Help and understanding

I have lupus

Tummy pain

Feeling unwell

Lupus questions

All I want for Xmas is...bedsocks

Breast surgery.

Has anyone bend treated at UCLH?

Finally saw my Rheumy

Barefoot With Lupus

Is it Lupus or is it not

Laura & I

⭐️ GP Practice

Very dry hands

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