Kind words please . . . : I'm from Iowa. I was... - LUPUS UK

LUPUS UK

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Kind words please . . .

Montross87 profile image
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I'm from Iowa. I was diagnosed with Fibromyalgia about 8-9 years ago. It's has been a struggle day in and day out for my family. Every year things get worse. New added symptoms. I've tried all the fibro meds and recommendations nothing worked for me. I switched doctors several times. Now we are starting to feel this is Lupus, RA, Sogrens, or some other autoimmune disease. Doctors at the university over looked many things. Let's face it I'm labeled because they can't figure it out. I wake up very stiff. My muscles and joints are in incredible pain. I get headaches not daily but enough. I'm fatigued terrible. My ankles, wrists, ARMS, and I feel my calves are swelling. I have difficulty walking at times because of my legs feel strange. My upper arms have been turning a reddish color. My hands hurt. Ankles, knees, hips, elbows, back, shoulders etc. I do have stomach issues and am lactose intolerant. I feel very weak. At work I feel I have to keep stopping like I don't have the strength tong any more. I do miss alot of time. My mouth, nose, and eyes feel so dry. I have a dry cough. My vision is blurry. I have tingling and numbness. Wbc is high now. Crp is at 5.3 I do have the red pin prick blood marks. Any advice would be so appreciated! My kidneys have had a little protein and had epthliel cells at 23 ? Rbc was little low once My aunt does have Lupus.

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Montross87 profile image
Montross87
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4 Replies
Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK

Hi Montross87,

Welcome to the LUPUS UK HealthUnlocked Community!

Joint/muscle aches and pains, extreme fatigue and skin involvement are all common symptoms associated with lupus. To find out what other symptoms are associated with lupus, you can download our free information pack here: lupusuk.org.uk/request-info...

Although you haven’t had a diagnosis of lupus, 90% to 95% of people with lupus will experience muscle and/or joint pain. We published an article on our blog about pain management which contains helpful tips and information: lupusuk.org.uk/pain-managem...

Fatigue is one of the most common symptoms of lupus; it affects around 90% of lupus patients. We published an article on our blog about 'managing fatigue' which contains helpful tips and information which you can read here lupusuk.org.uk/managing-fat...

Skin involvement is common in lupus, with 60-70% of people with lupus reporting some skin problem. You may like to have a read of our guide on lupus and the skin here: lupusuk.org.uk/wp-content/u...

Have you consulted an optometrist or eye specialist about your blurred vision?

We published a factsheet on ‘LUPUS: The Mouth, Nose and Eyes’ which you can read here: lupusuk.org.uk/wp-content/u...

Fibromyalgia can be commonly diagnosed during early stages of lupus. There are specific tests and criteria that are required in order to make a diagnosis of lupus which you can read about here: lupusuk.org.uk/getting-diag...

To read our factsheet on ‘LUPUS: and the Kidneys’ click here: lupusuk.org.uk/wp-content/u...

Please keep us updated, wishing you all the best.

Montross87 profile image
Montross87 in reply to Chanpreet_Walia

Question - My arms, chest, face, and upper legs. They are turning reddish on and off and burning very badly. I have a referral to Mayo clinic on the 19th. My ds DNA came back fine and ana negative the 2nd time. The 1st time it was positive and the titer was positive and speckled. Thank you!

Chanpreet_Walia profile image
Chanpreet_WaliaLUPUS UK in reply to Montross87

Hi Montross87,

I do apologise for the delay in response, I have been away and have only returned to the office today.

Rashes can appear on areas exposed to sunlight such as the face, arms and chest. It can also appear due to other factors which you should discuss with the consultant at your upcoming appointment.

You may wish to read our blog article on coping with light sensitivity here: lupusuk.org.uk/coping-with-...

We are not medically trained therefore we cannot comment on what your blood results indicate.

In order to prepare for your upcoming appointment, you can read our blog article on 'getting the most from your medical appointments' here: lupusuk.org.uk/getting-the-...

Best wishes!

leslieliesel profile image
leslieliesel

Your symptoms are feeling like mine did this past summer...it was my HORRIBLE rash that got the DX...first I had blood wok...my ANA was HIGH 1:1280 ...I asked for a skin biopsy of my rash and it indicated Lupus , Dermamyositis(sp?) so I went on to do further testing . Dermatomyiositis(sp?) was ruled out and Subcutate and maybe Discoid Lupus is my DX...

I have been feeling crummy for so long..I never told the dr because of the way my symptoms moved around and changed...I thought I was too old( 62) to get Lupus..guess not..

My Best as you find out what is REALLY going on with your health

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