Hope I'm not gatecrashing as I've not had an official diagnosis. But I'm so so desperate to understand what's wrong with me- all my consultant has said is that I defo have an autoimmune disorder but waiting for rheumatologist appointment.
I think I'm scared I've been left poorly for so long that I'm scared they won't listen to me!
My symptoms are -
Extreme fatigue- I feel 90 not 36 🙁
Terribly aching cracking sore bones and muscles around the joints- mainly hips/lower back but now ankles, wrists,One elbow (go the other one holding out!lol) and neck.
On and off terrible flu like symptoms usually with horrific headache,temp and red swelling over my face-cheeks and nose. But then just goes next day.
Huge changes in my tummy.
In the summer I started getting strange rashes on my arms but mainly chest after being In the sun and I got burnt for the first time ever even with high factor on. ( I have lived abroad so know my body and the sun eyc so this is so strangefor me )
Last wk my ankle just gave way after feeling weak and now I'm on crutches grrr.
I get numbness and tingling in my legs and arms and sometimes feels like creepy crawlies all over.
All the doctor keeps saying is my blood shows is that my inflammation markers are up.
What will the rheumatologist do from your experience in trying to diagnose me?
I'm so sad from the pain and feel old and useless- just want my life back 🙁
Sorry for a long rambled post! Oh lack if sleep! It' either sleep ALL the time or no sleep get