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LUPUS UK
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Another St Thomas update

Hi. Day 7... results of CT scan of lungs shows pulmonary hypertension and fibrosis 😞😢. Bloody lupus and mixed connective tissue disease. Just had an hour long cardiac MRI and having bone scan later. Lung specialist coming to see me later to discuss treatment with Prof De Cruz team. I want to go home xx thank you for all support

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You poor love! At least they are giving you a lot of attention, but being in hospital is horrible. A fresh bunch of hugs coming your way x

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Thank you so much!! Having bone scan and then another lung ct!! Xx

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Eee, seems like you are getting a thorough going over - kind of like the way the opposition forwards used to get a thorough going over by the Pontypool pack when they lay on the wrong side of a ruck.

I'm sure you will emerge with dignity though, bloodied but unbowed.

X

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Ha ha!! Love it!!! Also sleep deprived and lack of nutrition!! Xx

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If I lived nearer I'd bring you whatever eatable you most desited x

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Awww thanks that’s so kind. Xxx hubby coming today so I’ll send him off to get nibbles xx

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You are really being taken seriously now. You are in the best place, getting all tests, results, plan, in one place, during one admission.

Perhaps, not results you had hoped for, however, you should be given a proper care plan now. You are in good hands, have a great team, working on your behalf.

Wanting to go home is a good sign. As you say, you need to build up your immunity through proper nutrition, rest, a good nights sleep! And, the love of family and friends.

Well done! You have not been well. You have persevered, and now, you are getting heard and having a thorough assessment. Then, you can go home, knowing you, and the team, are all working from the same page.

St Thomas deserve recognition for sorting the health diagnosis. So, Well Done, St Thomas Staff, especially Prof Dr Cruz Team!!

Wolf1, your bravery being an in-patient, undergoing tests, helps us all here, fight on, in pursuing our own improved health, including better health care. Thank you for sharing and caring. X

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What lovely words!! Don’t feel very brave. They are wonderful. Havnt seen Prof since he admitted me, but his team assured me he was ‘pulling all the strings in the background to get me on right care plan’ xxx yours words mean a lot xxx

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Good Luck Wolf 1. You'll soon be back in your own comfy bed. Then have a rest to get over the hospital experience !

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Thank You for the update. This really has been a long grueling ordeal for you. I read that you were told that you are very brave...and then you said that you didn't feel brave. I understand both of sentiments ...I see you as being brave also xoxo..Yet when I was going through breast cancer, mastectomy, reconstruction, so many people said I was brave...believe me, Brave was the last feeling that I was having...well bc 12 years ago, now I get to endure what Lupus has for me.YEA!!....I am fortunate because my Rheumy Dr said,"You are an old(62), white, female, so you will not have a severe Lupus course"...So I am officially old!! xoxo All kidding aside, my heart breaks for all of you who began Lupus at a younger age..or have a particularly tough go of it.... Autoimmune disease is cruel ......

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You’re not old!!! Bless you you’ve been thru so much!! I think I’ve had lupus and other autoimmune diseases for a long time- but the last 2 years it’s been very prominent!! Thank you for the support xx

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xx.

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