my confused personality

[Zarick]

day by day i m lacking my confidance... i dnt know why but i get scared of long conversation... i scared of crowd nd i start avoiding ppl... even my reports are almost normal i dnt know y this is happening to me but it is realy killing me inside... each nd every minute i m fighting with my self. i m not able to take any minor decision. plz suggest me wht to do

[whisperit]

Hello Zarick,

It sounds as if it might be anxiety. Obviously, the best course of action would be to talk to someone who has a good understanding of psychological problems and who appreciates your diagnosis. In the meantime, there are places online where you can get ideas about self-help. For example: anxietybc.com/adults/introd...

Hope things get better soon x

[AgedCrone]

Maybe talk to your GP about having some therapy to help you get back to your old self,

I think everybody has little hiccups,which combined with having some health issues make every small thing become a mountain, but if you talk it through it can be overcome.

Good luck, I'm sure it's just a blip,& you will get your confidence back with a little help...but only if you ask for it..

[Leave-me-alone]

Hello Zarick

Good advise from whisperit and AgedCrone

Hope you will feel better. I did feel like that when my first attack lasted for 5 months. I was housebound all that time and was only seeing family, wear PJs and no shoes. The only places I was going to was the hospital and GP. At a push the pharmacy. On unpaid leave had no income too. I couldn’t even help around the house because I was in so much pain. At the time I felt useless and a waste of space. Towards to end of the 5 months, I was too scary to leave the house. I didn’t won’t to see anyone because I don’t know what to tell them. I didn’t want to return to work because I didn’t want to see people. After a month or so of going out bit by bit and seeing very close friends I feel better and better. Now back at work and feel normal again (only from time to time, lupus remind me I am not that normal. But we are special:-))

[Zarick in reply to Leave-me-alone]

thankyou

[Freckle1000]

The illness itself can be over whelming and anxiety provoking and its easy to get out of the way of socializing because your life experiences become very bit different to others around you. Fatigue can mess you around too.

But it might be worth bringing this up with your specialist next time you see her/him. I had a protracted experience of not being able to keep up with conversations - plan, organize - becoming easily overwhelmed. I had to push pretty hard to get an answer because a lot of the Doc's assumed it was anxiety but I knew I was in an unusual permanent brain fog. With me it turned out I was very low on iron and it was effecting my ability to think. Given the complex nature of SLE - its possible you should see whether there's a medical or possible medication cause ? just to make sure.

Massive doses of prednisolone makes me a little socially maladjusted, but if you're unwell and need it - you just have to try and get through it till you're able to reduce the dose.

[Zarick in reply to Freckle1000]

thanx allot dear... can u recommand me any related labs so i can chk wht is the reason behind it

[Freckle1000]

Hi Zarick,

Pretty much 'everything' We all have the same illness but it effects us all very differently which is what makes lupus so much toil.

The real job is haranguing your GP and Specialist to look at your medical history and figure out where to start looking. And I do mean haranguing - until they do they're job. If you know its a physiological problem - don't let them fob you off with psychological labels - depression etc.

Unfortunately - if you have the nasty form of SLE - this means looking at pretty much 'all' your internal organs and nervous system.

I know its a pain in the proverbial - but the pushing has to come from us. If you know there's something wrong - don't give up until you have a solid answer.

I am definitely not medical savvy - but as a standard to start with (?) - a full blood examination - your red and white blood cells - Leukocytes , electrolytes, Iron, (B12's) - enough to cover all the most basic possibilities just as a first step. (Might have to re - post others here for more info)

If they cant find a problem quickly - start with the specialist hopping to address what part of your body may have been effected.

Sometimes after a nasty flare - there can be some things that go un-diagnosed and its up to us to ask for multiple specialist referrals until we can get a sensible answer out of at least one of them....... or at least a thread or clue from the whole group - which will eventually lead to an answer.

[Zarick in reply to Freckle1000]

thanx allot

[Chanpreet_Walia LUPUS UK]

Hi Zarick,

There are some great articles on how to manage/cope at social gatherings and how to participate and pay attention in conversations which you may like to read here: healthcentral.com/article/m...

healthcentral.com/article/a...

Confusion and difficulty in articulating thoughts is often referred to as ‘brain fog’ by people with lupus; brain fog can be caused by stress, anxiety and fatigue. We published an article on our blog about coping with brain fog which you can read here: lupusuk.org.uk/coping-with-...

Having someone to speak to can help improve your overall wellbeing as well as help you cope with certain situations which can be tough. If you would like someone to speak to, we can provide you with LUPUS UK contacts who you can chat with over the telephone. These contacts are volunteers who mostly have lupus themselves; they are not medically trained but are there to offer support and understanding. If you would like a contact to speak to, you can email me at [e-mail] .

We published a factsheet that contains services and support helplines which may be of interest to you: lupusuk.org.uk/wp-content/u....

[Leave-me-alone]

See Zarick, you have made me learn more about lupus. I knew lupus was messing with my delay reaction and articulation with words. I didn't know it was called brain fog or iron level. That make sense now.

Me and my sister find my delay reaction and lost of words very funny. Can't beat it may as well have fun with it