Hi - So I posted many months ago after my first consultation which was very disappointing. My diagnosis of hypermobility was confirmed but everything else dismissed with no investigations.
I took the advice of the good folk on here and asked for a second opinion which the GP thought was a very sensible idea. I saw the 2nd rheumy in May and he was very thorough - spent an hour with me. Did an examination and talked me through what it could be. He did an anti-dsdna test and a CK check. Both of which were normal.
He then wrote to me/copied GP letter and said he had considered lupus (my ANA is borderline at 1:80, hair loss, mouth ulcers, joint pain and fatigue). But he wasn't convinced but did say that these things evolve over time and to contact with new symptoms.
One thing he did ask about was weird rashes which at the time I had only had one - a butterfly shaped rash on my chest when I sat in the sun last yr. The original doctor had said it was odd but as it was a one off it wasn't diagnostic.
Anyhow now I have a new selection of rashes on a daily basis. I've attached one but I have it on arms/torso and legs at times. The legs are more bright red/flat and non itchy. The arms more pink and splotchy and the abdomen pink blobs. It gets worse when I walk/do exercise. Doesn't make a difference if it is hot or cold. It comes up and down throughout the day. I have been taking cetirizine in case it was an allergy but it has made no difference.
My GP had no idea and at first said come back in a few weeks but I said that Rheum had mentioned rash and so she emailed for advice with pics. They have asked for her to refer me back to them. So that is where I am at the moment. Waiting for the referral letter.
I can't help but worry (Google doesn't help) - whether this could be indicative of lupus or vasculitis. I know that worrying does not help at all.
Just wondered what others experience of rashes was and any tips?