Hi all, I haven't written anything here for a while, but I do follow what's happening. About three weeks ago I woke up at about 3am to go to the toilet. When I was in the bathroom, I realised I had a really sore throat, then I started feeling that I was going to black out. I got back to the bedroom and told my husband I thought I was in trouble. I threw up had an extremely high temp was sweating all over. Then I blacked out, when I came too I was in extreme pain. I blacked out several times. My husband called an ambulance. They were finding it hard to find a vein. My blood pressure went very low. In the hospital my heart enzyme was elevated, which led them to believe I had a heart attack, on further investigation they ruled this out. I also had blood in my urine. I was very sick, thought I was going to die. After a lot of tests and a few days in hospital, they decided to let me go home. They don't know what happened. Can lupus present itself in this way. I was feeling ok for a while but this morning I woke up with pain in all my joints and migraine. Has any of these things happened to anyone here. Thank you in advance
Blacking out: Hi all, I haven't written anything... - LUPUS UK
Harold 123, I am so sorry to hear you went through this. Did you get released from hospital with any knowledge? I hope you find some relief soon! XO
Thanks Jenny, they said they might never find out what happened, the problem is I'm feeling really sick, pains all over body and high temp at the moment don't want to go back to hospital
It sounds really scary. But if you feel so bad why don't you go back to a hospital? Or to your GP/rheumy?
Maybe you are having an ugly flare and your lupus treatment needs adjustment?
There was this one time when I woke up with awful joint pain and fever, it was a flare. That led to me being diagnosed with SLE.
I hope you feel better soon. Big hug.
Hi Samantha, thank you for your reply. I atayed home, went through a very bad night of fever and pain. I'm still in pain. I have a bad history with doctors. In particular my rheumatologist. I haven't been to her in about three years. I think you are right it's a flare and I do need to see someone soon, thanks for the support xx
I know that sometimes when we feel worst we don't have the energy to deal with Drs and hospitals. So ironic.
You really deserve to feel good and be pain feee.
I'm sorry to hear that you have had difficulty with your rheumatologist. You should really be seen more regularly than this so that you can be monitored and have your treatment adjusted if necessary. It is possible that these symptoms could be a result of your lupus flaring, but further investigations by your consultant may be needed to confirm this.
If you are unhappy with your current rheumatologist, it may be worth asking your GP to refer you to a different one. If you'd like recommendations of a consultant, let us know whereabouts you live and we may be able to help you.
I am going to my gp on Friday, I am going to ask her to refer me to someone else. I am quite unwell at the moment so I really need to do something. I live in Cork, Ireland but I could travel to Dublin, it would be great if you could recommend someone for me. I'm really quite lost at the moment. Thanks again
I'm afraid I don't know any lupus specialists based in the Rep. of Ireland. Unfortunately the support groups based there are not active at the moment, but there are a couple of people you could try contacting;
email@example.com - Caroline Daly is involved with Ireland Lupus Support Group and LUPUS EUROPE, she may be able to recommend any lupus specialists.
facebook.com/groups/lupusgr... This is a closed Facebook group for the Lupus Group Ireland charity which sadly had to close. I believe this Facebook group is still active though and there are lots of people with lupus in Ireland who could recommend consultants.
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