Hair loss

[Rubylu]

Eek, I'm having a slight flare with tremor, sores around nails, joint swellings, muscle aches and the dreaded fatigue. I have also started moulting ! 🙁

[happytulip]

Just wanted to say that I am so sorry about the hairloss. I can entirely empathise as I go through stages of losing handfuls of hair. It happens daily with me but worse during a big flare. Its almost like my body teases me and the hair loss settles down, and then bam...comes back with a vengeance.

Have you started any new meds that could be a culprit?

Big hugs to you. So far my hair has always grown back. Its still a shitty feeling though so much love and hugs xx

[Rubylu in reply to happytulip]

Thank you Happytulip. That's just how it is for me too. I lose plenty on most days, but when I get a flare, no matter how tiny, I suddenly lose loads. I find it on my pillow and brushing my hair is way too scary! I tend to wash it gently & just let it dry without brushing. I think it tries to grow back. I get odd little tufts here and there. It it is now getting noticeably thin. I used to have such a mane of thick lustrous hair, so I do hate this symptom.

I feel for anyone losing hair. You have to keep finding. Ew ways to present yourself to the world, and not always in the way you'd like to,

I'm glad yours grows back a bit.

I'm fine really, it's just if I see that much come out in one go, I know that I'm in for a few weeks of it!!!

Take care. X

[Paul_Howard Partner LUPUS UK]

Hi Rubylu ,

We have a blog article about hair loss in lupus which may be of interest to you. You can read it at lupusuk.org.uk/coping-with-...

[Rubylu in reply to Paul_Howard]

Great read. Thank you.

[Cann]

You have my sympathy, too, I have regular sores around my nails and was told by a dermatologist that all there was to take was a drug with caustic soda in it. I declined and use tea tree and lavender oil in a base that relieves the soreness, but has not healed it completely. I also get times of hair- loss and a dermatologist was not much help. She said it was from within and when I get healthy my hair will grow - I am still waiting, but it is better than it has been. I wear a wig and get on with it, but in such hot weather it is a pain and I tend to stay at home and go without it when I can. I think I would go out without it, but my husband doesn't like the idea. I think infections set off the flare for me and being subjected to too much pollution such as traffic fumes, etc. I do my best to keep the physical as well as emotional stresses as low as possible - all I can do really as I can't take any drugs; they just make everything worse.