Rheumatologist appt gone wrong: Very disappointed... - LUPUS UK

LUPUS UK

32,248 members28,608 posts

Rheumatologist appt gone wrong

Ratana21 profile image
11 Replies

Very disappointed. I switched rheumatologist bc my old one basically told me i have Sjogren's and gave me meds but didn't tell me what it is or what all I need to do. I was diagnosed with Sjogren's, lupus, and RA but not one dr has helped me. I waited months to see this new one and she's probably worse. She told me Sjogren's is just dry eyes and dry mouth. Then she said just exercise and it'll break the cycle of joint pain which will then help me sleep which will then control my anxiety. I asked about my rashes that are there everyday but says that's not related and maybe it's something from my detergent or skin contact with something. I asked about my light sensitivity and she said it has nothing to do with lupus or Sjogren's and that maybe I just need a different pair of glasses. Say what? The last thing she said to me was *there's no cure and not much treatment and see you in 6 months to see if things are worse*. I thought she would be knowledgeable since this is Emory- one of the best in GA. But I guess not. Feeling so defeated.

Written by
Ratana21 profile image
Ratana21
To view profiles and participate in discussions please or .
Read more about...
11 Replies
starbook13 profile image
starbook13

All the symptoms you have mentioned I have and my doctor tells me it's all part of the lupus.

Loopydroopy profile image
Loopydroopy

I also live in GA, who did you see at Emory. I may be able to help you with better doctor.

Ratana21 profile image
Ratana21 in reply toLoopydroopy

I saw Dr ****** in Stockbridge. Then today I saw Dr *******. I would love to get a referral to a dr that would just take the time to help me. She basically left me feeling hopeless...told me there's no cure and not much of a treatment.

Loopydroopy profile image
Loopydroopy in reply toRatana21

I'll have you a name and phone # tmrw. Need to confirm with a very good friend of mine to make sure I have the right contact info. But my friend loves loves loves her. I also made an appointment but decided to give my current Dr one more chance.

Ratana21 profile image
Ratana21 in reply toLoopydroopy

Thank you so much!

Loopydroopy profile image
Loopydroopy in reply toRatana21

Dr Mala S Kaul

With Piedmont

404-367-3350

My friend says she is wonderful!!!!

Ratana21 profile image
Ratana21 in reply toLoopydroopy

I will definitely contact him tomorrow to see if they accept my insurance. Thank you so much...crossing my fingers

Loopydroopy profile image
Loopydroopy in reply toRatana21

I pray they will!! Keep me posted.

PMRpro profile image
PMRpro

" She told me Sjogren's is just dry eyes and dry mouth."

REALLY?! Never mind the other rubbish...

I'm left to ask where she did her rheumy training. I've come across some pretty dodgy ones - that beats all so far!

Penelope-Mary profile image
Penelope-Mary in reply toPMRpro

My reaction too 😠

shareasmile profile image
shareasmile

Wow. There are some real doozies out there. The good doctors are few and far between.

Not what you're looking for?

You may also like...

Phone appt with Rheumatologist yesterday

Hi everyone, I finally had the appointment yesterday and have to say it went just okay. I tried to...
JennaShi profile image

Dear Sjogren's

Now while I wait for a "formal diagnosis" of lupus - and am now confirmed of sjogren's...after...
Ratana21 profile image

Anyone experiencing severe dry eyes with lupus?

I started have severe issues with dry eyes a little over a year ago along with dry mouth. A couple...
ladylooking profile image

Rheumatologist does he know what he's talking about

4 months after I got my ANApositive result my rheumatologist turns around and tells me even though...
Vickmt profile image

Sjogrens or Fobbed-off-by-rheumatologist syndrome?

I had an unexpected rheumatologist appt today (long story). Anyway I saw a different guy - the...
Polly2Cats profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.