I am wondering if anyone else is on warfarin due to having blood clots. I have to stay on warfarin for life I have been told . They say if you have 2 or more unexplainable blood clots you have to stay on warfarin permanently. I have argued that I don't think my 2 clots were unexplainable, the first one in my brain was 3 months after having a brain tumour removed , I was put on warfarin but taken off it after 18 months even though the clot is still there and always will be , they have explained it's ok because of the way blood is flowing. The second clot was when I was in hospital recovering from Meningitis, the clot was in my groin and it was a large one , I had been in hospital for weeks not moving and I thought it was common to get clots in that situation that's why they give you the blood thinning injections. They insist that I have to stay on warfarin for life and so I am wondering if they think clots are lupus related . Anyone else had this ?
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