I don't have lupus myself but my learning-disabled daughter does. It's difficult sometimes for me to judge what is important or just a fleeting pain, and to know when I should worry or just go with the flow. On the whole she's fairly healthy though. Just before diagnosis she had a DVT in her thigh and the consultant recommended she walk a minimum 5,000 steps a day. We have done this ever since (about five years) and funnily enough her fatigue gets a bit better the more she manages to walk.
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