Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for February 2016

Fed Up And Stressed...

I have Lupus SLE with RA and Raynauds overlap. I've had a cough for over a year. Chest X-rays were clear but CT scan has picked up nodules in my lungs. I've...

I have Lupus SLE with RA and Raynauds overlap. I've had a cough for over a year....

Tots38

•8 years ago

5 Replies

Pain in toes and feet

I've been having pain and cramp in my toes and soles of my feet for over 5 years. All that time I've been wearing orthotic insoles but even with the insoles...

I've been having pain and cramp in my toes and soles of my feet for over 5 years...

clova

•8 years ago

15 Replies

Just diagnosed with severe lupus!What??? Yeah thats what my doctor said!At first he said borderline that took a quick 180 .Plaquenil 2 a day

Okay at first my rheumatologist said "you may be borderline lupus...and I was like"WTH is that??After waiting 3 weeks for labs to come back from California .I...

Okay at first my rheumatologist said "you may be borderline lupus...and I was li...

Julietsmombless2015

•8 years ago

24 Replies

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Lupus and hypothyroidism

Hi, I was diagnosed with an under active thyroid around 3 months ago. Since then I have been taking thyroxine. I have a blood test this week because...

Hi, I was diagnosed with an under active thyroid around 3 months ago. Since th...

meb24

•8 years ago

9 Replies

I was diagnosed with mild lupus in 2014

Very first went to the doctor's feeling very tired lots of pain in my arms and legs rash all over my body when I was exposed to the sun. Doctor very good do I...

Very first went to the doctor's feeling very tired lots of pain in my arms and l...

julie1970

•8 years ago

16 Replies

Now a grandma.

Hi, all my lupie family, my beautiful step daughter gave birth to a gorgeous 6lb 7oz baby boy on Thursday night. We have had a very busy few days and my lupus...

Hi, all my lupie family, my beautiful step daughter gave birth to a gorgeous 6lb...

KarenC

•8 years ago

8 Replies

Life Insurance

Can anyone help please I'm looking for life insurance and struggling to get one to accept as I have Lupus SLE as my old one is about to run out. HELP thanks in...

Can anyone help please I'm looking for life insurance and struggling to get one ...

Loraine14

•8 years ago

6 Replies

Unsure what to do.

So on thursday just gone, I had a review appoint with the head rheumatologist at my local hospital. The rheumatologist talked to me about how he wanted to...

So on thursday just gone, I had a review appoint with the head rheumatologist at...

seanto

•8 years ago

5 Replies

Menopause and flares

I woke up this morning in the worst crash I have had in some time. I am 52 and peri menopausal. Each time I have my next period I seem to be left in a mini...

I woke up this morning in the worst crash I have had in some time. I am 52 and p...

johare

•8 years ago

19 Replies

Injections

I went to the hospital on Monday to see the nurse. I have to go back on 4th April to see both nurse and consultant. That is when i will be starting...

I went to the hospital on Monday to see the nurse. I have to go back on 4th Apri...

LouLamb

•8 years ago

16 Replies

Pip Assessment

Had my PIP Assessment of 4th February. Did not go how i thought it would. Thought the lady from ATOS would ask me different questions than what she did. She...

Had my PIP Assessment of 4th February. Did not go how i thought it would. Though...

LouLamb

•8 years ago

7 Replies

Have you received confirmation of your DLA mobility award this year?

I've just received a call from somebody who is currently receiving an indefinite DLA mobility award and is due to change her adapted car. Usually she receives...

I've just received a call from somebody who is currently receiving an indefinite...

Paul_Howard

Partner•8 years ago

7 Replies

Do you travel? Would you like to share your story?

We've been approached by Medical Travel Compared who would like to interview somebody with ‪lupus‬ for a blog-style article aimed at inspiring travel among...

We've been approached by Medical Travel Compared who would like to interview som...

Paul_Howard

Partner•8 years ago

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How you tell someone?

Hi, I started to date again , he knows I've been through stress and stuff over the passing of my husband but I don't know how to tell him about lupus , cause I...

Hi, I started to date again , he knows I've been through stress and stuff over t...

Hidden

•8 years ago

5 Replies

Room is spinning .....

Hi, Just recently I've been having dizzy spells and they've come and gone throughout the day, but tonight I felt really bad with it. I had just finished...

Hi, Just recently I've been having dizzy spells and they've come and gone throug...

georgie63

•8 years ago

5 Replies

My abdo saga: jackpot...THANK YOU FOLKS

Following on from my posts here over recent months: a HUGE thank you to ALL who have helped me GREATLY to process/interpret my flaring symptoms while my...

Following on from my posts here over recent months: a HUGE thank you to ALL wh...

Barnclown

•8 years ago

31 Replies

Nitrofurantoin

Hi I have SLE, DLE and Fibromyalgia. I have a suspected kidney infection and yesterday I was prescribed Trimethorpin but after checking if it was safe to take...

Hi I have SLE, DLE and Fibromyalgia. I have a suspected kidney infection and yes...

jajeni68

•8 years ago

9 Replies

How did your diagnosis start?

Recently, I've been tracking my progress and understanding more things about Lupus & what it does to the mind and body. How the attack started on my body:...

Recently, I've been tracking my progress and understanding more things about Lup...

BrittneyP

•8 years ago

2 Replies

I am 52 and my patience are gone. I can't read any thing more than 2 or 3 paragraphs. I have forgotten how to count to 50..wow

At the gym with my sister counting her reps on machine. I got to 45 and then said 55. She looked at me with puzzlement, and exclaimed 46 and it took me for a...

At the gym with my sister counting her reps on machine. I got to 45 and then sa...

faceme

•8 years ago

4 Replies

Lupus causes atonic bladder ?!!

Anyone suffers from atonic bladder (neurogenic bladder) caused by lupus or mixed connective tissue disease? or i'm the only one? does it improve on Ritoximab...

Anyone suffers from atonic bladder (neurogenic bladder) caused by lupus or mixed...

Samaka

•8 years ago

2 Replies

Can anyone recommend a travel insurance provider?

Had 3 quotes today ... £280, £298 & £360

Nat1969

•8 years ago

19 Replies

Montelukast

Hello, A friend of mine went to a clinic and was treated for sinus infection/allergies with Montelukast. She took it for a week then developed blisters and...

Hello, A friend of mine went to a clinic and was treated for sinus infection/al...

ZaNorah

•8 years ago

2 Replies

I feel like I have too many symptoms to complain about anymore. So I just been keeping to myself.I'm sick of hearing myself .

I feel weird calling my doctors over and over .They dont seem to help anyways.I know you're supposed to be an active member of your own health.But I feel broke...

I feel weird calling my doctors over and over .They dont seem to help anyways.I ...

Julietsmombless2015

•8 years ago

12 Replies

Prolapses anyone?

Hello again all 👋👋👋!....so, following on from my 2 recent posts & the great discussions they got going (👏👏👏 many thanks) i'm continuing to prep for my...

Hello again all 👋👋👋!....so, following on from my 2 recent posts & the great d...

Barnclown

•8 years ago

28 Replies

Just found out my son has lupus

Hi I'm marnie my son Got bloods took in October as they thought it was porphyria the bloods came back 4 days ago Friday just passed and the dermatologist said...

Hi I'm marnie my son Got bloods took in October as they thought it was porphyria...

Marnie83

•8 years ago

22 Replies

Can't figure out why my skin feels like it's burning.

I'm 39 yrs old and can't pin point the cause of what I have been dealing with and this is do to many conditions I have. I have...

I'm 39 yrs old and can't pin point the cause of what I have been dealing with an...

Destiny330

•8 years ago

11 Replies

Sudden visibility of veins on palms?

Has anyone experienced this? Sometimes I look at my palms and I can see the veins really clearly, as if the skin was tissue-thin. I suspect it is a vascular...

Has anyone experienced this? Sometimes I look at my palms and I can see the vein...

Purpletop

•8 years ago

12 Replies

Benlysta infusions

Hi I'm due to get benlysta iv infusions and wondering if anybody has had it and if it wirks

Hi I'm due to get benlysta iv infusions and wondering if anybody has had it and ...

ladylou

•8 years ago

14 Replies

No longer have lupus

Hi in2009 I had the lupus rash,really badface,ears,arms,chest,feet and fingers.plus high BP, bloods not good.joint pain fast heart rate and really hot.anyway...

Hi in2009 I had the lupus rash,really badface,ears,arms,chest,feet and fingers.p...

fragile

•8 years ago

8 Replies

Possibly Lupus

Hi after being diagnosed with Fibro just before Christmas I have been to see another Rheumatologist (last week) he was much more thorough and he looked at my...

Hi after being diagnosed with Fibro just before Christmas I have been to see ano...

Rocky3

•8 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2016

Fed Up And Stressed...

Pain in toes and feet

Just diagnosed with severe lupus!What??? Yeah thats what my doctor said!At first he said borderline that took a quick 180 .Plaquenil 2 a day

Lupus and hypothyroidism

I was diagnosed with mild lupus in 2014

Now a grandma.

Life Insurance

Unsure what to do.

Menopause and flares

Injections

Pip Assessment

Have you received confirmation of your DLA mobility award this year?

Do you travel? Would you like to share your story?

How you tell someone?

Room is spinning .....

My abdo saga: jackpot...THANK YOU FOLKS

Nitrofurantoin

How did your diagnosis start?

I am 52 and my patience are gone. I can't read any thing more than 2 or 3 paragraphs. I have forgotten how to count to 50..wow

Lupus causes atonic bladder ?!!

Can anyone recommend a travel insurance provider?

Montelukast

I feel like I have too many symptoms to complain about anymore. So I just been keeping to myself.I'm sick of hearing myself .

Prolapses anyone?

Just found out my son has lupus

Can't figure out why my skin feels like it's burning.

Sudden visibility of veins on palms?

Benlysta infusions

No longer have lupus

Possibly Lupus

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