Lupus causes atonic bladder ?!!: Anyone suffers... - LUPUS UK

LUPUS UK

31,893 members28,222 posts

Lupus causes atonic bladder ?!!

Samaka profile image
2 Replies

Anyone suffers from atonic bladder (neurogenic bladder) caused by lupus or mixed connective tissue disease? or i'm the only one? does it improve on Ritoximab 500 mg once per week for 4 weeks?

Written by
Samaka profile image
Samaka
To view profiles and participate in discussions please or .
Read more about...
2 Replies
LUPUSadmin profile image
LUPUSadmin

Hi Samaka,

Unfortuantely, LUPUS UK are not medically trained so we aren't able to advise on this matter.

Does your consultant believe the atonic bladder to be connected to your lupus? It might be worth asking them whether this treatment will work with your bladder.

George

Hello Samaka,

I have an atonic bladder, it has not worked properly for 10 years. It started after a large bowel operation which obstructed and I think the nerves to the bladder were damaged.. I hope you have been referred to a urologist, if not, you need to see one.

I have noticed on this website that a lot of people with lupus have urinary problems,

so perhaps there is a link?

I had 2 lots of Rituximab, and didn't notice any difference at all, but I was referred to

immunology, and told that my immunoglobulins were very low, and I would have to have 3 weekly infusions for the rest of my life!

Since then I have had a huge reduction in urine infections, so I think my immune system is struggling to work again, thats good!

I hope you get some answers soon as bladder problems are not nice and are a constant worry when out and about. Best wishes.

You may also like...

Has anyone found that lupus has caused bladder issues?

have you found that having lupus may have caused some issues with your bladder or anything to do...

The cause of lupus SLE.

be wrong but this is how I think lupus SLE is caused. You have a lupus gene and are exposed to a...

What symptoms can Lupus cause?

to MS and which to Lupus. But the more I read about Lupus the more I think Lupus could explain...

Researchers find a genetic cause of lupus

mutation has been shown to cause lupus, providing clear evidence of one way this disease can......

Can lupus cause lactose intolerance?

something else in full fat milk? But yeah, can lupus cause an intolerance to things?