Hello again all 👋👋👋!....so, following on from my 2 recent posts & the great discussions they got going (👏👏👏 many thanks) i'm continuing to prep for my gyn/urology physio appt this week. This appt is on referral by my surgeon urologist this time - continuing investigations into 5 months of flaring severe internal abdominal pain (quite new & different to the chronic lower GI symptoms I've been managing very successfully all my life...I won't go into detail now because there is lots in those 2 previous posts)
today I reviewed my files from previous gyn/urology physio sessions in 2009 & 20012....in there I found i'd been given an excellent NHS pelvic floor advice leaflet that includes diagrams & info on several types of abdominal/gyn/uro prolapse....which has now got me thinking: could some sort of "visceral" condition/prolapse be the source of these severe pain flares?
So, I got out my official bibles: Wallace's Lupus & Sjogrens books + 'Hypermobility, Fibromyalgia and Chronic Pain' by Hakim, Keer & Grahame (Churchill Livinstone Elsevier, 2010) and found excellent sections re bowel dysfunction, visceral disorders (inc prolapses) etc
I already have had at least 1 prolapse (an ehlers danlos hypermobility type anal prolapse involving severe early onset piles - requiring NHS full-on haemorrhoidectomy when I was only in my early 30s (not due to constipation or any other normal cause)), so now I'm curious what sort of investigations it would be reasonable to request from the NHS...I recently had a full abdominal/thoracic ultrasound scan which found nothing sinister...my feeling is that ultrasound scanning isn't the most refined and effective type of imaging available, so what about MRI? Or even laparoscopy?
If anyone here has experience of of internal organ prolapse in the lower abdomen/pelvis (be this prolapse to gyn, or urinary tract, or lower GI organs) I'd be very glad to learn about your symptoms, investigations & treatment...am guessing that at 62, with EDH + infant onset SLE & early onset sjogrens, some sort of visceral prolapse is a distinct possibility (especially as I have 'history' of early onset visceral prolapse).