Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,241 posts

All posts for December 2015

Positive ANF test

Hi, im looking for some advice please. After being housebound for two years with severe me/cfs, last week i got a 'very positive' result from an ANF (ANA)...

Hi, im looking for some advice please. After being housebound for two years with...

Kate16

•9 years ago

28 Replies

Giving up work or reducing hours

Hi there Ive sle and work as a customer service team leader. My job involves long periods on the phones, and long hours sitting at my desk on the pc. I...

Hi there Ive sle and work as a customer service team leader. My job involves lo...

Tre123

•9 years ago

5 Replies

Pip

Hi there,I suffer from lupus sle.I applied for pip a year ago and was awarded in may 2015.I receive higher living allowance but wasn't awarded anything for...

Hi there,I suffer from lupus sle.I applied for pip a year ago and was awarded in...

ramada

•9 years ago

11 Replies

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ESA Appeal

Hi,ive had lupus since i was 16,am now 38,i was denied ESA,0/15!,my appeal hasnt been scheduled yet.I have finally got a letter of my specialist saying im...

Hi,ive had lupus since i was 16,am now 38,i was denied ESA,0/15!,my appeal hasnt...

RAZ76

•9 years ago

8 Replies

Might have lupus?! -_-

Ok so where do I start... Ever since 2 years ago I've been suffering from sever joint pain. Mid October, I got really ill. I was exhausted constantly, felt...

Ok so where do I start... Ever since 2 years ago I've been suffering from sever...

Wiki_pie

•9 years ago

11 Replies

First appointment.

Hi everyone, Just want to say thank you for all the great advice and support that you gave me regarding my Rheumatology consultation. It was by far the most...

Hi everyone, Just want to say thank you for all the great advice and support tha...

midge66

•9 years ago

4 Replies

Illness Anniversary

Hi Everyone Today, 12 December, I am 'celebrating ' 29 years of being diagnosed with undifferentiated connective tissue disease!. I'm interested to know from...

Hi Everyone Today, 12 December, I am 'celebrating ' 29 years of being diagnosed ...

misty14

•9 years ago

6 Replies

cipro causing lupus

Has anyone heard of cipro causing lupus

cinlee57

•9 years ago

5 Replies

Suffering from depression

I was taken ill late August coughing up blood ,found nothing after various tests,but I had pleurisy,so was in bed for about 5 weeks,the I coughed up blood...

I was taken ill late August coughing up blood ,found nothing after various tests...

mousey1

•9 years ago

11 Replies

Midiagnosed - update

Hi guys , just an update on my misdiagnosis. Had an appointment with my rheumatologist who agrees with the consultant radiologist that I do in fact have...

Hi guys , just an update on my misdiagnosis. Had an appointment with my rheuma...

chandlermandy

•9 years ago

1 Reply

When systems fail. A warning.

When systems fail and for once not mine. I have been taking Flecainade for atrial fibrillation along with a bag of other meds for five years now. This and...

When systems fail and for once not mine. I have been taking Flecainade for atria...

johare

•9 years ago

2 Replies

Feeling scared

So I saw eye specialist and md Monday finally. She sent me to get blood work to check blood results. She ordered chest xray to check for sarcoidosis and brain...

So I saw eye specialist and md Monday finally. She sent me to get blood work to ...

ac489

•9 years ago

10 Replies

tongue

Hi guys I've been experiencing a type of black fungal towards the back of my tongue over the past couple years. It would come & go every few months but of...

Hi guys I've been experiencing a type of black fungal towards the back of my to...

Taurion

•9 years ago

11 Replies

Pain

I need advise please.iI have an appointment to see rheumatology doctor Dec 22. I have reduced steroid now to 6mg and my legs are killing me....muscle pain...

I need advise please.iI have an appointment to see rheumatology doctor Dec 22. ...

adrienneioannou

•9 years ago

3 Replies

Imuran -Azathioprine

I have just been prescribed this drug for my sle. I have been in a continuous flare nearly a year with severe pain, swelling, fatigue etc and getting no...

I have just been prescribed this drug for my sle. I have been in a continuous fl...

Shann07

•9 years ago

5 Replies

Lupus LOVES stress, rearrange your life to knock out what lupus lives on emotionally.

I got used to not talking to people about it. when my eyes both turned black, I said I was in a car accident because people could process that information...

I got used to not talking to people about it. when my eyes both turned black, ...

mariearmstrong

•9 years ago

35 Replies

Worried

Hi I have been suffering from joint pain and muscle pain since christmas last year, it comes and goes but each time it comes back it gets worse, I have lost...

Hi I have been suffering from joint pain and muscle pain since christmas last ye...

Rocky3

•9 years ago

12 Replies

My husband Black lungs

My husband has black lungs copd emphysema and the last few weeks has been the worse ive seen him he has went inhot the steriod shot antibodies and back in with...

My husband has black lungs copd emphysema and the last few weeks has been the wo...

maggi_carter

•9 years ago

2 Replies

Should I go back on hydroxy?

Hi if you have read my previous post you will see that my rhumey has taken me off hydroxy because my bloods were reading week positive and didn't believe I...

Hi if you have read my previous post you will see that my rhumey has taken me of...

Hidden

•9 years ago

3 Replies

Prednisone and goose bumps

Hi there. 2 separate topics really. In the past 2 weeks I have been enduring and overwhelming all over body sensation of goosebumps. Undiagnosed but with all...

Hi there. 2 separate topics really. In the past 2 weeks I have been enduring and...

Rosebud13

•9 years ago

3 Replies

I need help! I'm so confused

I really don't know where to start but here goes.... I was diagnosed with sLe by my GP and rhumey 4 years ago I was put on hydroxy and had regular 3/6 months...

I really don't know where to start but here goes.... I was diagnosed with sLe by...

Hidden

•9 years ago

32 Replies

I do what little I can...

I have a water filter device, and just recently went off of GMO'S. Im quite excited about the GMO thing because I got instant positive results!! not...

I have a water filter device, and just recently went off of GMO'S. Im quite ex...

mariearmstrong

•9 years ago

3 Replies

Quite Confused SLE

Hi, I have been seeing so many different doctors for the past 2.5 years now and always seem to get different opinions. I am constantly fatigued, constant pain...

Hi, I have been seeing so many different doctors for the past 2.5 years now and ...

Hidden

•9 years ago

8 Replies

Misdiagnosed ?

Hi. I apologise for how long this is but worth reading and has been pretty cathartic for me to write . Last week I had a scan for kidney stones. Nothing...

Hi. I apologise for how long this is but worth reading and has been pretty catha...

chandlermandy

•9 years ago

3 Replies

Stopping Azathiaprine

Hi, I stopped my Azathiaprine 2 weeks ago as I am starting methotrexate next week. I have been having headaches every day .... Waking up in the morning with...

Hi, I stopped my Azathiaprine 2 weeks ago as I am starting methotrexate next we...

Louise0802

•9 years ago

1 Reply

Azathioprine

I've just been subscribed these instead of the planquil has anyone else tried these and how are you getting on. Just want to fund out if they helped and any...

I've just been subscribed these instead of the planquil has anyone else tried th...

Tre123

•9 years ago

22 Replies

30 year lupus vet, just starts meds...

I'm 51 and just started taking meds after 30 years diagnosis Chapter One- I was 5 years shunned and abused by doctors, then when they acknowledged my...

I'm 51 and just started taking meds after 30 years diagnosis Chapter One- I w...

mariearmstrong

•9 years ago

26 Replies

PIP, won my case!!!

I first applied for pip in February this yr, went for my assessment in April & was awarded 6points. After reading all assessment notes I was outraged to learn...

I first applied for pip in February this yr, went for my assessment in April & w...

smudge1980

•9 years ago

10 Replies

Cardiac stress profusion test

My wife has lupus. She is being sent for a cardiac stress profusion test. We have read that she might as well toss a coin. She is particularly worried because...

My wife has lupus. She is being sent for a cardiac stress profusion test. We hav...

KIERANCULLEN70

•9 years ago

2 Replies

Appointment!

Hi everyone, Just wanted to say that I took the "plunge" and I have my first Rheumatology appointment a week today. Already I am starting to think about it and...

Hi everyone, Just wanted to say that I took the "plunge" and I have my first Rhe...

midge66

•9 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2015

Positive ANF test

Giving up work or reducing hours

Pip

ESA Appeal

Might have lupus?! -_-

First appointment.

Illness Anniversary

cipro causing lupus

Suffering from depression

Midiagnosed - update

When systems fail. A warning.

Feeling scared

tongue

Pain

Imuran -Azathioprine

Lupus LOVES stress, rearrange your life to knock out what lupus lives on emotionally.

Worried

My husband Black lungs

Should I go back on hydroxy?

Prednisone and goose bumps

I need help! I'm so confused

I do what little I can...

Quite Confused SLE

Misdiagnosed ?

Stopping Azathiaprine

Azathioprine

30 year lupus vet, just starts meds...

PIP, won my case!!!

Cardiac stress profusion test

Appointment!

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