Just wanted to let you know - after 3 months taking LDN I'm feeling really great!! I've even moved house and not had a flare up!! It's amazing. I get the odd grumble in my joints and tendons (not surprising considering all the stress of moving and lifting heavy boxes etc) and I think 'uh oh here we go again' ...but it doesn't come to anything! I feel so grateful that I feel like my real self at last and no longer confined to bed all the time!
after 2 weeks: it was easier to feel happy about life
after 4 weeks: I noticed I had a much higher tolerance to pain
after 6-8 weeks: my immune system seemed to calm right down
I really recommend it. The only side effects have been vivid dreams, and when I was increasing my dose, and trying to find my best dose, I noticed I got a bit dizzy and heart racing, so that's how I settled on 2.0ml. I started on 0.5ml and increased by 0.5ml every fortnight until I found 2.0ml best for me. It's so amazing to finally find a drug that works for me. And it has none of the horrible side effects of the normal lupus drugs I tried. Hurray!!
If you've not heard of LDN I'll post some links about it in the comments below. It's not available on the NHS and I had to buy a prescription from a private doctor and I buy the drug from a chemist in Scotland by post.