Hi all I saw Dr Sangle months ago in place of my usual consultant Prof Khamashta...(.I already know I have APS as this is why I saw Prof Khamashta a few years back.)
I had to stress to Dr Sangle about my fatigue and hair loss etc and that although I am not suffering as awfully some are with worse symptoms etc, that this has affected my life and my attendance at university and my ability to cope.
Dr Sangle diagnosed me with Lupus and said he'd put me on Hydroxychloroquine.
It took me having to ring up weeks later and actually chase up to get my consultation letter following my appointment, as my GP couldn't give me the Hydroxychloroquine without the letter. Anyway... The nurse got my prescription up to me and my letter was sent out.
In the letter Dr Sangle has not acknowledged any of my fatigue or hair loss issues and has not even stated he diagnosed me with Lupus. I feel it has been completely disregarded in the letter content and actually states NO CLINICAL MANIFESTATIONS OF LUPUS... I was extremely upset and very disappointed with this and can't even fathom out why he hadn't put my diagnosis in or my symptoms.... Yet states I'm to be on Hydroxychloroquine??
I've emailed the nurse...no reply...Nothing new....I've left a message for her on answer machine... No reply.
I want my diagnosis stated in writing and my symptoms acknowledged... I've really struggled this year and my grades and ability to cope with things have nosedived.... My bloods taken that day were 27 or something like that for antiDsDna compared to previous borderline/mild positive results.
I've had a couple of mouth ulcers and sore nose inside since then and my wrists sometimes ache now along with just one finger (odd?)....I feel like he's took no notice of how I've been feeling.
What can I do now....I really felt relieved after him diagnosing me....then when I read his letter I was very shocked and actually a bit disgusted.