Mycophenolate : As i have a strong history of... - LUPUS UK

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Mycophenolate

chandlermandy profile image
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As i have a strong history of macular degeneration i have been advised to stop hydroxychloroquine and try Mycophenolate . Anybody else use it and do the side effects balance out with improvement in condition? Xx

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chandlermandy
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Purpletop profile image
Purpletop

I've been on mycophenolate for 2.5 years. Other than some muscle twitching and hip dull ache, I don't have any mycophenolate side effects. Comparing to hydroxyl that caused skin rashes and brown spots, palpitations and white hair, I prefer myco. As for the improvement - hydroxy helped my fatigue but myco helped the rest of my symptoms, so for me myco trumps hydroxy in a straight fight. And why risk your vision...

chandlermandy profile image
chandlermandy in reply to Purpletop

Thank you purple top that's good to know.

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