I have just joined the group and as wondering whether anyone could offer some advice or help.
I was diagnosed with lupus about 3 years ago and put on hydroxy chloroquine. My main symptoms at the time were fatigue and some muscle and joint pain. Following my initial rheumatology appointments I was told I would have 6 monthly check ups. Last year I had to chase this up after waiting 9 months. I have now not had a rheumatology appointment since last September. I had one booked for August but this has been rescheduled to October. I am having an increase in symptoms. I have developed a rash in the sun for the first time but more problematic is the severe hip pain. I have been to my GPS and they sent me for physio, after a few visits the physio referred me back to rheumatology. He made a separate referral as he wasn't sure it was lupus related. That referral was cancelled by the hospital as I am already seeing rheumatology. My GP won't help as he says I need to see my consultant but I as I said above that appointment is long overdue and been postponed. Has anyone experienced anything similar and if so any ideas what I should try to get this resolved? I am in constant pain, can't sleep and am really struggling with what to do. Thank you