Hi I have had a uctd diagnosis for 3 years in November, recently I have come to terms that this may be permanent and lupus is just part of it rather than a single cause. I wanted to reach out to people who also have uctd and feel like I did, like you don't have answers yet and you don't have a diagnosis. I want to tell you that you do have a diagnosis and you're not alone, I run a blog on blogger called the butterfly diaries, I also have a Facebook page, a twitter and a Google plus. Please if anyone needs advice, support or information come find me and I will do my best to either help you or point you in the right direction.
Love and spoons
Xxx Loubie xxx