Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were 'clear' and when I looked at the screen and asked why one was 'flagged' he said 'oh yes, your vitamin D is low', the third just sent me away with strong painkillers and now this one... She told me after looking through all my tests, MRIs, lumbar puncture (telling me that it's normal to have antibodies/O bands in the spinal fluid... er no its not I said) and telling me I probably have 'Fibromyalgia' and that's the 'road she's looking at'. Okay, I said, but can we please rule out other things?
So more tests for Lyme Disease (I've spelt this out over and over - I'm a fieldworker and spent a lot of the summer outdoors before I fell ill) although having known a few colleagues who've had Lyme Disease I doubt it's that. Coeliac Disease and.... Lupus. I told her I'd had an ANA test it was 'borderline' but she said they'll do another. I said I didn't mind how many blood tests I had - I'd do one every day from now til Christmas if they give me some kind of answer.
She suggested anti-depressants. I suggested a referral to a rheumatologist. She said 'we'll hold back on that'. I left the surgery, limping, exhausted and sat in the car and cried. I got home and ate cake... If I have coeliac disease I'm really done for - I live on cake.
Ah well... at least I fed the surgery pet vampire...
Sorry guys just offloading.