Not one of the many docs she's seen has even mentioned lupus in there attempts to make her well again. I have Raynaud's phenomena and my other daughter has this too. How should I go about getting her diagnosed properly? She's always in pain and really fed up with not knowing what's wrong with herself! As a mum I hate seeing her in hospital in soo much pain, I'd give my life to take her pain away. Where do I start?