Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,894 members28,223 posts

All posts for January 2014

Ive just been diagnosed with mild Lupus! Im currently feeling confused! Ive been in a lot of pain for 2yrs!!

The consultant was very matter of fact! He emphasised the word mild and I'm now ...
Vonnie80 profile image

When did your Lupus rash start?

Was your rash one of your first symptoms (as I always thought it was) or did it ...
DaleDiva profile image

Fed up!!!!

Fed up of taking all the pill? Don't wona take them anymore going to talk to rhe...
Mainshah profile image
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Anyone with children with lupus panniculitis

Hi all , I would like any information on lupus panniculitis my 9 year old son ha...
roxxie81 profile image

Hi does anyone know if there is a Lupus support group in Fordingbridge or Ringwood in Hampshire?

Was diagnosed 2 years ago. Recently have had a flare up and have been very unwe...
daphers profile image

Mycophenolate question

I have been on mycophenolate for two weeks, I have had a cold for weeks which se...

Tonsils removed!! Ouch!

Hi everyone, I am feeling sooo sorry for myself today, I had my tonsils removed ...
Sianied profile image

I have just been diagnosed with SLE Lupus.

I'm 19 and I'm finding it hard to cope with.. And I has blood test that is showi...
Elisha13 profile image

There is hope!

Just wanted to let you all know that there is hope. In 2010 I was diagnosed wi...
Maya23 profile image

Communicating Chronic Pain Workshops

The following is from the Communication Chronic Pain team; "Currently we are lo...
Paul_Howard profile image
Partner

Does lupus come under Vat exemption

I was looking at buying a coaguchek machine as my blood levels are up and down l...
lennox profile image

Help!!

Had 8 miscarriages before it was found. Am sore n fed up!!! Any help ?! Xx
Angandmia01 profile image

Day 8 of flaring and bloods still negative???

Hi guy's, Apologies for my moaning again but I'm soooo frustrated! Went back to ...
sezzie profile image

s anyone been put on thalidomide pills i have forms 2 fill in next week for no other pills are working i have had lupus for 12 years and try

i have it on face and arms
weetheresa profile image

Anyone else had to have a scalp biopsy?

Just had to have 2 scalp biopsies yesterday afternoon due to my extensive hair l...
Belee profile image

Anyone taken MigraMax 900mg/10mg powders, acetylsalicyclic acid and metoclopride hydrochloride for Lupus headaches and nausea? Please share.

I also take Hydroxychloroquine 200 twice a day. Only on 2nd month of medication ...
Wendy39 profile image

Anyone have advice on levels of depression before/after flares? does anyone have headaches/depression stead of their usual symptoms?

Can we have head flares?
Tinae12 profile image

Naproxen??

So, just come out of hospital as some of you may have read. My rheumatologist p...
zebedee01 profile image

Falling asleep when you shouldn't?

My tiredness has become really bad in the past week. I sleep about 6-7 hours a n...
Elle-26 profile image

Tendon in knee popping?

Last Monday I managed to tear ligaments in my foot. I have a history of weak lig...
Bonnie39 profile image

Continuity of care if dr leaves St Thomas'?

Absolutely gutted. Finally had my long awaited (6 months post blood confirmation...
Bonnie39 profile image

Hip,Knee and Lumbar pain

just got the answer to my back pain,I have 3 bulging discs.Just wondering if any...
charlie007 profile image

How do you flare???

Hi guys, I was just wondering what your symptoms are when you are flaring and ho...
sezzie profile image

facial swelling

I find that when I have the rash on my face, my face swells up, esp under my eye...
tjperfick profile image

Cholesterol....

never had a high cholesterol count before but did this time. Seronegative Hughes...
loublou profile image

Any body else suffer from whole body shaking, even whilst they are asleep?

For the past few months I have been shaking whilst in bed, especially when I mov...
tiredmum profile image

Water retention

Water retention I recently had a massage and I was told that I had a lot of wa...

Hi, Has anyone tried Fluoxetine as part of treating raynauds? has there been anyside effects?

My Raynauds is getting so painful during the winter months that I need to try so...
Kellyleg profile image

Can anyone help me, re getting reflexology. I have had it a few times in the past and found it really relaxing but not since I've had Lupus?

I have discoid lupus with some SLE symptoms. I have noticed on here that some pe...
Wendy39 profile image

Alternative Therapy

Hi, I'm fed up of taking all this toxic medication. I watched my Mom take the sa...
Tiamonet profile image