Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,918 members • 28,241 posts

All posts for January 2014

Ive just been diagnosed with mild Lupus! Im currently feeling confused! Ive been in a lot of pain for 2yrs!!

The consultant was very matter of fact! He emphasised the word mild and I'm now feeling very unjustified for ever having complained about pain!! Life for the...

The consultant was very matter of fact! He emphasised the word mild and I'm now ...

Vonnie80

•10 years ago

26 Replies

When did your Lupus rash start?

Was your rash one of your first symptoms (as I always thought it was) or did it occur later as seems to be happening with me. I was diagnosed with CNS Lupus...

Was your rash one of your first symptoms (as I always thought it was) or did it ...

DaleDiva

•10 years ago

19 Replies

Fed up!!!!

Fed up of taking all the pill? Don't wona take them anymore going to talk to rheumy on Monday fed up and had enough of it all.;(

Fed up of taking all the pill? Don't wona take them anymore going to talk to rhe...

Mainshah

•10 years ago

10 Replies

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Anyone with children with lupus panniculitis

Hi all , I would like any information on lupus panniculitis my 9 year old son has just been diagnosed he has had symptoms since the age of 7, I have scoured...

Hi all , I would like any information on lupus panniculitis my 9 year old son ha...

roxxie81

•10 years ago

5 Replies

Hi does anyone know if there is a Lupus support group in Fordingbridge or Ringwood in Hampshire?

Was diagnosed 2 years ago. Recently have had a flare up and have been very unwell. Thought it might be useful to meet and chat with others as i feel that...

Was diagnosed 2 years ago. Recently have had a flare up and have been very unwe...

daphers

•10 years ago

4 Replies

Mycophenolate question

I have been on mycophenolate for two weeks, I have had a cold for weeks which seems to finally be getting better. I have swollen, really painful glands on my...

I have been on mycophenolate for two weeks, I have had a cold for weeks which se...

joannebond360

•10 years ago

12 Replies

Tonsils removed!! Ouch!

Hi everyone, I am feeling sooo sorry for myself today, I had my tonsils removed yesterday and it hurts!!! I am 30 years old, which I think is an unusal age to...

Hi everyone, I am feeling sooo sorry for myself today, I had my tonsils removed ...

Sianied

•10 years ago

10 Replies

I have just been diagnosed with SLE Lupus.

I'm 19 and I'm finding it hard to cope with.. And I has blood test that is showing protein in my kidneys? Anyone know what will happen next?

I'm 19 and I'm finding it hard to cope with.. And I has blood test that is showi...

Elisha13

•10 years ago

6 Replies

There is hope!

Just wanted to let you all know that there is hope. In 2010 I was diagnosed with Lupus after many years of chronic fatigue, aches and pains, but now I am in...

Just wanted to let you all know that there is hope. In 2010 I was diagnosed wi...

Maya23

•10 years ago

14 Replies

Communicating Chronic Pain Workshops

The following is from the Communication Chronic Pain team; "Currently we are looking for participants to join 4 workshops, led by artists, where we aim to...

The following is from the Communication Chronic Pain team; "Currently we are lo...

Paul_Howard

Partner•10 years ago

1 Reply

Does lupus come under Vat exemption

I was looking at buying a coaguchek machine as my blood levels are up and down like a yo yo and on the web page states if h have are chronically ill you can...

I was looking at buying a coaguchek machine as my blood levels are up and down l...

lennox

•10 years ago

8 Replies

Help!!

Had 8 miscarriages before it was found. Am sore n fed up!!! Any help ?! Xx

Angandmia01

•10 years ago

8 Replies

Day 8 of flaring and bloods still negative???

Hi guy's, Apologies for my moaning again but I'm soooo frustrated! Went back to see my doc today for yesterday's blood results which have come back "normal"...

Hi guy's, Apologies for my moaning again but I'm soooo frustrated! Went back to ...

sezzie

•10 years ago

28 Replies

s anyone been put on thalidomide pills i have forms 2 fill in next week for no other pills are working i have had lupus for 12 years and try

i have it on face and arms

weetheresa

•10 years ago

9 Replies

Anyone else had to have a scalp biopsy?

Just had to have 2 scalp biopsies yesterday afternoon due to my extensive hair loss. Sooooo painful and now the anaesthetic has worn off it's excruciating and...

Just had to have 2 scalp biopsies yesterday afternoon due to my extensive hair l...

Belee

•10 years ago

19 Replies

Anyone taken MigraMax 900mg/10mg powders, acetylsalicyclic acid and metoclopride hydrochloride for Lupus headaches and nausea? Please share.

I also take Hydroxychloroquine 200 twice a day. Only on 2nd month of medication following diagnosis. Just been taking neurofen and paracetamol until now. Thank...

I also take Hydroxychloroquine 200 twice a day. Only on 2nd month of medication ...

Wendy39

•10 years ago

3 Replies

Anyone have advice on levels of depression before/after flares? does anyone have headaches/depression stead of their usual symptoms?

Can we have head flares?

Tinae12

•10 years ago

6 Replies

Naproxen??

So, just come out of hospital as some of you may have read. My rheumatologist prescribed me naproxen, I'm not 100% why to be honest, I didn't ask at the time...

So, just come out of hospital as some of you may have read. My rheumatologist p...

zebedee01

•10 years ago

14 Replies

Falling asleep when you shouldn't?

My tiredness has become really bad in the past week. I sleep about 6-7 hours a night (never slept deeply) but now Im falling asleep or so tired my eyes drop...

My tiredness has become really bad in the past week. I sleep about 6-7 hours a n...

Elle-26

•10 years ago

11 Replies

Tendon in knee popping?

Last Monday I managed to tear ligaments in my foot. I have a history of weak ligaments having ruptured them all in both ankles as a teen. This week I've been...

Last Monday I managed to tear ligaments in my foot. I have a history of weak lig...

Bonnie39

•10 years ago

4 Replies

Continuity of care if dr leaves St Thomas'?

Absolutely gutted. Finally had my long awaited (6 months post blood confirmation) appointment at St T las week. Dr collected medical history and ordered a...

Absolutely gutted. Finally had my long awaited (6 months post blood confirmation...

Bonnie39

•10 years ago

12 Replies

Hip,Knee and Lumbar pain

just got the answer to my back pain,I have 3 bulging discs.Just wondering if anyone else had this problem,and what treatment was given,along with anti...

just got the answer to my back pain,I have 3 bulging discs.Just wondering if any...

charlie007

•10 years ago

6 Replies

How do you flare???

Hi guys, I was just wondering what your symptoms are when you are flaring and how long they usually last? Thanks in advance & I hope you are all well.

Hi guys, I was just wondering what your symptoms are when you are flaring and ho...

sezzie

•10 years ago

6 Replies

facial swelling

I find that when I have the rash on my face, my face swells up, esp under my eyes. Any ideas??

I find that when I have the rash on my face, my face swells up, esp under my eye...

tjperfick

•10 years ago

2 Replies

Cholesterol....

never had a high cholesterol count before but did this time. Seronegative Hughes, seronegative lupus, bilateral avn. Now on statins....lupus or Hughes the...

never had a high cholesterol count before but did this time. Seronegative Hughes...

loublou

•10 years ago

2 Replies

Any body else suffer from whole body shaking, even whilst they are asleep?

For the past few months I have been shaking whilst in bed, especially when I move, and even when I am asleep. I originally thought it was because I had to stop...

For the past few months I have been shaking whilst in bed, especially when I mov...

tiredmum

•10 years ago

5 Replies

Water retention

Water retention I recently had a massage and I was told that I had a lot of water retention and when I went to my gp I was simply told that it is part of...

Water retention I recently had a massage and I was told that I had a lot of wa...

wotshernameagain

•10 years ago

3 Replies

Hi, Has anyone tried Fluoxetine as part of treating raynauds? has there been anyside effects?

My Raynauds is getting so painful during the winter months that I need to try something, I have tried herbal remedies but these do not work.... I have been...

My Raynauds is getting so painful during the winter months that I need to try so...

Kellyleg

•10 years ago

5 Replies

Can anyone help me, re getting reflexology. I have had it a few times in the past and found it really relaxing but not since I've had Lupus?

I have discoid lupus with some SLE symptoms. I have noticed on here that some people with lupus have had adverse reactions to massages etc

I have discoid lupus with some SLE symptoms. I have noticed on here that some pe...

Wendy39

•10 years ago

7 Replies

Alternative Therapy

Hi, I'm fed up of taking all this toxic medication. I watched my Mom take the same medication and more, she's had multiple organ failure twice now has kidney...

Hi, I'm fed up of taking all this toxic medication. I watched my Mom take the sa...

Tiamonet

•10 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2014

Ive just been diagnosed with mild Lupus! Im currently feeling confused! Ive been in a lot of pain for 2yrs!!

When did your Lupus rash start?

Fed up!!!!

Anyone with children with lupus panniculitis

Hi does anyone know if there is a Lupus support group in Fordingbridge or Ringwood in Hampshire?

Mycophenolate question

Tonsils removed!! Ouch!

I have just been diagnosed with SLE Lupus.

There is hope!

Communicating Chronic Pain Workshops

Does lupus come under Vat exemption

Help!!

Day 8 of flaring and bloods still negative???

s anyone been put on thalidomide pills i have forms 2 fill in next week for no other pills are working i have had lupus for 12 years and try

Anyone else had to have a scalp biopsy?

Anyone taken MigraMax 900mg/10mg powders, acetylsalicyclic acid and metoclopride hydrochloride for Lupus headaches and nausea? Please share.

Anyone have advice on levels of depression before/after flares? does anyone have headaches/depression stead of their usual symptoms?

Naproxen??

Falling asleep when you shouldn't?

Tendon in knee popping?

Continuity of care if dr leaves St Thomas'?

Hip,Knee and Lumbar pain

How do you flare???

facial swelling

Cholesterol....

Any body else suffer from whole body shaking, even whilst they are asleep?

Water retention

Hi, Has anyone tried Fluoxetine as part of treating raynauds? has there been anyside effects?

Can anyone help me, re getting reflexology. I have had it a few times in the past and found it really relaxing but not since I've had Lupus?

Alternative Therapy

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