Is anyone else taking myfortic or cellcept . I ha... - LUPUS UK
Is anyone else taking myfortic or cellcept . I have a very bad case of sle, many organs involved
Hi - many of us here are taking mycophenolate (myfortic/cellcept are brand names). It's one of the least unpleasant lupus drugs, in my experience - so if your question is whether you ought to take it, or whether it will help, then I'd say it almost certainly will.
Good luck.
Yes - and I certainly wouldn't be without it! Tried azathiaprine first and that didn't help me. Really try to give it a go - I have been 'well' on it for about 10 years now.
Yes I take it, I have tried Methotrexate & Azathioprine and they didn't help me. I have been on Mycophenolate for some years now and it definitely helps.
Hi cellcept was the first drug I took that actually started to make a difference. I had been on azathioprine and had a reaction and cyclosporine which are large horse pills that smell like manure that didn't do much for me, but I noticed a real difference with cellcept 
Do give cellcept a go. I have been on it for quite a few years now and my life has really changed. Sure I still have flares but there has been an improvement. The side effects are minimal. Good luck to you.
M
I'm taking myfortic 320mgs x2 a day. I feel it has really made a difference to me. Was prescribed this after plaquenil caused reactions.
Give it a go.
Take care.
I take myfortic twice a day because of my transplant. They smell horrible like nicotine and urine combined together. But they keep my kidney working so i can't really complain.
