Been on an increasing dose of Myco for a couple of weeks and am now on 1g twice a day. 2 weeks ago when I went up to this final dose I had a stressful few days and became overtired resulting in a flare. I am presuming it is a flare and not a reaction to Myco. Thing is, when should the Myco work effectively enough to prevent/reduce flares? I am also anaemic and awaiting an iron transfusion so that hasn't helped the fatigue
I also think I am experiencing some form of denial... diagnosed recently with CNS Lupus following loads of tests but mainly on clinical presentation. Now I am thinking maybe they have got it wrong as I don't seem to be responding to the Myco... but they would be sure for them to use such a strong drug wouldn't they?
Or am I being impatient (been on Myco 6 ish wks)....
Words of wisdom and support needed please