About 6 weeks ago I came off the steroids and I suffered with breathing difficulties. These difficulties felt like not taking in enough oxygen and constantly taking deep breaths. Well has the weeks went on the breathing gradually got back to normal, and iv been fully off the steroids now 3 weeks with not much pain however the breathing problem has started again over the last week or so and it really wearing me down I can't see to breath enough. Has anyone else suffered with this ???
Breathing: About 6 weeks ago I came off the... - LUPUS UK
Breathing
So to hear you're suffering with this, one of the most unpleasant symptoms. Yep, I suffer the same symptoms every time I get pleurisy. Doc recommended ibuprofen to reduce inflammation but years of medication my stomach lining can't take it!...if you do take it (under direction from your doc) I would just make sure you always take it after food...piece of bread/milk at least. Hope you start to feel better soon xxxx
(Meant to write 'sorry to hear' not 'so' !) oops! X
Is this quit common?? I thought is was something to do with the steroids.
Hi, I've suffered similar periodically. Did breath tests at gp, she eventually gave me inhalers to take as and when both blue and brown, the brown have steroids in. I only ever use them if I feel short of breath. I feel like my lung capacity has shrunk, if you know what I mean. Go to the doc.
Thanx I have an appointment with my consultant on Tuesday so will explain the situation to him.
I had the same thing, it took about 3 months to get rid of the breathlessness after stopping the steroids. And, like you, the breathlessness was on and off but gradually disappeared, so give it time.
Coming off steroids too quickly can cause side effects. Did you taper down your steroids? The lower the dose of steroids the slower the taper. I am tapering at the moment and several times ( I am aware that there will initially be pain and discomfort for a few days) I have had to go back up to the previous dose as the pain became became unbearable. Good you have a Rheumy appt soon. Take care.
Yes I am currently experiencing the same thing, but my Dr just says it's because it's concentrating on my breath too much, lol, tell that to stairs when I'm trying to climb them.
No, I don't really find many Dr's supportive, they just don't seem to understand any of this, and come off uncaring, and generally dismissive. I hate it when they treat me like a looney because they don't have any real education on these kind of disorders and or diseases. GP's I find the worst as they only have a general knowledge. I do get that they can't have a huge amount for knowledge for every illness, but it does get annoying when you cant get anywhere and you end up repeating the same thing to many people over and over, DOH! lol