Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2012

Neurological symptoms?

I am having really awful symptoms of vertigo at the moment, whenever I move my eyes left or right it sets of a spinning sensation, and even when I am lying...

I am having really awful symptoms of vertigo at the moment, whenever I move my e...

Maya23

•11 years ago

8 Replies

What is your secret for healthy ageing with Lupus?

ribitribi

•11 years ago

8 Replies

Topic of the Month: November - Forgetfulness (Brain Fog)

Memory problems are a fairly common symptom experienced by patients with lupus or Hughes syndrome (anti-phospholipid syndrome). The experience is often...

Memory problems are a fairly common symptom experienced by patients with lupus o...

Paul_Howard

Partner•11 years ago

9 Replies

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I wonder why Lupus takes a while to show up!? if ever ? views please !?

To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but one blood test has come back negative ! My question is ..... how long until...

To recap .... 5 positive ANA s symptoms and red faced over cheeks and nose, but ...

larissa

•11 years ago

24 Replies

locking fingers and jumbled up reading and writing

Have a Q 4 you all. Has anyone any experience or knowlidge of the new probs i have. After a good day yesterday I find myself messing up words in reading and...

Have a Q 4 you all. Has anyone any experience or knowlidge of the new probs i ha...

Hidden

•11 years ago

13 Replies

Apparently runnng out of options for pain relief???

I saw a gp today to say that the co-codamol I was prescribed last week was not touching the pain. My gp said to me 'well theres not a lot left to try now, you...

I saw a gp today to say that the co-codamol I was prescribed last week was not t...

megs_tom

•11 years ago

31 Replies

Should we be symptom free when not in a flare???

Just fishing for some info guys,are any of you symptom free when not in a flare ?or is it we still get the symptoms but just not as intense ?i can honestly say...

Just fishing for some info guys,are any of you symptom free when not in a flare ...

brave

•11 years ago

27 Replies

At a loss. I don't know who we are supposed to turn to.....

I saw my rheumatologist on Friday. I gave him an A4 piece of paper with all my new symptoms on. He didn't even have the decency to read it. I told him that I'm...

I saw my rheumatologist on Friday. I gave him an A4 piece of paper with all my n...

purple-lou

•11 years ago

17 Replies

please adviice , i'm totally freaked out !!!!!!!!!!!!!!!!

Just woke up and as i turned my head i could hear my neck makin a grinding noise as it moved !!!!! Its still doing it evertime i turn my head . Really...

Just woke up and as i turned my head i could hear my neck makin a grinding noise...

larissa

•11 years ago

12 Replies

Sore tonight, winter is here.

I know majority of people get flares in summer but mine seem to come in spring and autumn/winter. Mostly when the weather changes. Tonight I am so sore. Two...

I know majority of people get flares in summer but mine seem to come in spring a...

browneyes2012

•11 years ago

8 Replies

Good night

After a few shocking bad days and nights I finish on a yippee note. TODAY WAS GOOD. So hope some of you can say the same. And if not today then maybe...

After a few shocking bad days and nights I finish on a yippee note. TODAY WAS ...

Hidden

•11 years ago

2 Replies

flares

hi, i have mixed connective tissue disorder ie lupus and sjogrens, i also have arthritis of knee ,toe and jaw the latter of which has caused me terrible pain...

hi, i have mixed connective tissue disorder ie lupus and sjogrens, i also have a...

rockchic

•11 years ago

2 Replies

Eye film and Plaquenil?

I keep having the feeling like a film is over my left eye, it doesn't go away when I rub the eye. I had an ophtalmologist checking everything and didn't find...

I keep having the feeling like a film is over my left eye, it doesn't go away wh...

Purpletop

•11 years ago

4 Replies

Confused????summer is usually the poision?but it seems winter is also?

Hey to you all,just wandering if anyone suffers just as much during winter as during summer ,for me summer always brings on flares ,and i get respite from...

Hey to you all,just wandering if anyone suffers just as much during winter as du...

brave

•11 years ago

22 Replies

stopping immunosurpressants

any body ever stopped taking immunosurpressants after been on them for a year?,i stopped taking them 5 weeks ago due to low white blood count,i have no signs...

any body ever stopped taking immunosurpressants after been on them for a year?,i...

poodlegal

•11 years ago

5 Replies

Red and painful eyes

Hi All, I hope you are all doing well and if not you are bearing up ok Do any of you suffer with red and painful eyes? The pain can come in waves and feel...

Hi All, I hope you are all doing well and if not you are bearing up ok Do an...

Tich

•11 years ago

6 Replies

Just a tought / idea....

I have noticed that a lot of you have not entered the area you live in. How about we all did this and then perhaps there are a few who live near another and...

I have noticed that a lot of you have not entered the area you live in. How abou...

Hidden

•11 years ago

14 Replies

TIPS!!!!!!!!!

Just thought it would be a GREAT idea if we all shared any tips we have 4 dealing with things, getting through the day, overcoming certain things etc :0) For...

Just thought it would be a GREAT idea if we all shared any tips we have 4 dealin...

Sher78

•11 years ago

20 Replies

Huh !!!!!!!!!!!???????????

Well, been thinking for a long while about reducing my hours at work , so i get a day off mid week. I have been finding a full week quite hard for a long time....

Well, been thinking for a long while about reducing my hours at work , so i get ...

larissa

•11 years ago

10 Replies

Rocking it 2day :0D

Ok, things r looking good 2day (although 2morrow could b an ENTIRELY different matter as u all well know!). After a crap nite's sleep (yet again!), headache...

Ok, things r looking good 2day (although 2morrow could b an ENTIRELY different m...

Sher78

•11 years ago

19 Replies

nuro virus

hi my little boy has come home from school sick. he/we have just had the virus a few weeks ago. has anyone else had the virus again and again? have a bad chest...

hi my little boy has come home from school sick. he/we have just had the virus a...

tracyxx

•11 years ago

3 Replies

Research Study in Scotland seeking Participants

We've just received these details of a research study in Scotland; "Do you have joint pain in your hips or knees? Are you interested in making some...

We've just received these details of a research study in Scotland; "Do you ha...

Paul_Howard

Partner•11 years ago

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Anxious all the time

Even though the last few months my lupus is asleep I feel nervous and scared. My last appointment with my doctor was great, all my blood tests were great,...

Even though the last few months my lupus is asleep I feel nervous and scared. ...

ribitribi

•11 years ago

10 Replies

Unbearable Itching

Does anybody get really itchy all of a sudden to the point where it is unbearable? Not sure if its too much salt that triggers it off, as i did have 3...

Does anybody get really itchy all of a sudden to the point where it is unbearabl...

chucch

•11 years ago

25 Replies

ill again !!!!!!!!!

I was ill last wed and thursday , bunged up ,permanent headache etc I felt a lot better so went back on friday but........ yesterday felt a little bunged up...

I was ill last wed and thursday , bunged up ,permanent headache etc I felt a lot...

larissa

•11 years ago

5 Replies

lupus thumb

has anyone seen this on the london lupus center site? My thumb is exactly like this and the rheumy did not pick up on it! This is what they say: Lupus...

has anyone seen this on the london lupus center site? My thumb is exactly like ...

Hidden

•11 years ago

7 Replies

ESA letter

Just had my ESA letter and I'm seriously worried. I take forever to fill in forms as my brain just doesn't work. I take so long to get ready for appointments...

Just had my ESA letter and I'm seriously worried. I take forever to fill in form...

helentad

•11 years ago

9 Replies

I do not believe it.............

Two nights without sleep due to pain, yesterday to the docs because of my foot hurting so much and so swollen (apparently caused by our friendly loopy) and...

Two nights without sleep due to pain, yesterday to the docs because of my foot h...

Hidden

•11 years ago

17 Replies

Advice please

I think I've been fairly lucky and since being on these meds I've not suffered colds or sore throats etc., I had Rituixmab end of October and on the usual...

I think I've been fairly lucky and since being on these meds I've not suffered c...

annie330

•11 years ago

8 Replies

dangerously low white blood count whats next?

Hi everyone I have been on Azathrioprine since september (also on plaquinel) I have been having the fortnightly blood monitoring and on one occasion my...

Hi everyone I have been on Azathrioprine since september (also on plaquinel) ...

LULU85

•11 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2012

Neurological symptoms?

What is your secret for healthy ageing with Lupus?

Topic of the Month: November - Forgetfulness (Brain Fog)

I wonder why Lupus takes a while to show up!? if ever ? views please !?

locking fingers and jumbled up reading and writing

Apparently runnng out of options for pain relief???

Should we be symptom free when not in a flare???

At a loss. I don't know who we are supposed to turn to.....

please adviice , i'm totally freaked out !!!!!!!!!!!!!!!!

Sore tonight, winter is here.

Good night

flares

Eye film and Plaquenil?

Confused????summer is usually the poision?but it seems winter is also?

stopping immunosurpressants

Red and painful eyes

Just a tought / idea....

TIPS!!!!!!!!!

Huh !!!!!!!!!!!???????????

Rocking it 2day :0D

nuro virus

Research Study in Scotland seeking Participants

Anxious all the time

Unbearable Itching

ill again !!!!!!!!!

lupus thumb

ESA letter

I do not believe it.............

Advice please

dangerously low white blood count whats next?

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